Artwork

Kandungan disediakan oleh Leslie Krongold, Ed.D. and Leslie@GlassHalfFull.online (Leslie Krongold. Semua kandungan podcast termasuk episod, grafik dan perihalan podcast dimuat naik dan disediakan terus oleh Leslie Krongold, Ed.D. and Leslie@GlassHalfFull.online (Leslie Krongold atau rakan kongsi platform podcast mereka. Jika anda percaya seseorang menggunakan karya berhak cipta anda tanpa kebenaran anda, anda boleh mengikuti proses yang digariskan di sini https://ms.player.fm/legal.
Player FM - Aplikasi Podcast
Pergi ke luar talian dengan aplikasi Player FM !

International Myotonic Dystrophy Awareness Day

17:21
 
Kongsi
 

Manage episode 341214053 series 1148431
Kandungan disediakan oleh Leslie Krongold, Ed.D. and Leslie@GlassHalfFull.online (Leslie Krongold. Semua kandungan podcast termasuk episod, grafik dan perihalan podcast dimuat naik dan disediakan terus oleh Leslie Krongold, Ed.D. and Leslie@GlassHalfFull.online (Leslie Krongold atau rakan kongsi platform podcast mereka. Jika anda percaya seseorang menggunakan karya berhak cipta anda tanpa kebenaran anda, anda boleh mengikuti proses yang digariskan di sini https://ms.player.fm/legal.

September 15th is International Myotonic Dystrophy Awareness Day. To learn more about helping educate and advocate for Myotonic Dystrophy visit the Muscular Dystrophy Association or Myotonic Dystrophy Foundation.

The purpose of this Awareness Day is to garner the attention of the wider general public, policy makers, regulators, biopharmaceutical representatives, researchers, health care professionals, and anyone with an interest in changing the future of myotonic dystrophy. Raising awareness of myotonic dystrophy will help improve service provision, basic research, drug development, and policymaking related to the disease. Increased funding for myotonic dystrophy research will improve health outcomes, reduce disability, and increase life expectancy for individuals living with the disease, and holds great promise for helping individuals with diseases with similar genetic bases, such as Fragile X syndrome and Huntington’s disease.

To learn about the different types of myotonic dystrophy, visit this NORD webpage.

In addition to this podcast host/producer who lives with Myotonic Dystrophy Type 1, the following podcast episodes have featured guests living with DM1, DM2, or caregivers in a DM family:

Food = Medicine

Passion and Motivation to Move through the Hard Stuff

Working with Wounded Warriors

Music Gives Me a Peace Bubble

Salute to Caregivers

Stories of Healing with Essential Oils

  continue reading

107 episod

Artwork
iconKongsi
 
Manage episode 341214053 series 1148431
Kandungan disediakan oleh Leslie Krongold, Ed.D. and Leslie@GlassHalfFull.online (Leslie Krongold. Semua kandungan podcast termasuk episod, grafik dan perihalan podcast dimuat naik dan disediakan terus oleh Leslie Krongold, Ed.D. and Leslie@GlassHalfFull.online (Leslie Krongold atau rakan kongsi platform podcast mereka. Jika anda percaya seseorang menggunakan karya berhak cipta anda tanpa kebenaran anda, anda boleh mengikuti proses yang digariskan di sini https://ms.player.fm/legal.

September 15th is International Myotonic Dystrophy Awareness Day. To learn more about helping educate and advocate for Myotonic Dystrophy visit the Muscular Dystrophy Association or Myotonic Dystrophy Foundation.

The purpose of this Awareness Day is to garner the attention of the wider general public, policy makers, regulators, biopharmaceutical representatives, researchers, health care professionals, and anyone with an interest in changing the future of myotonic dystrophy. Raising awareness of myotonic dystrophy will help improve service provision, basic research, drug development, and policymaking related to the disease. Increased funding for myotonic dystrophy research will improve health outcomes, reduce disability, and increase life expectancy for individuals living with the disease, and holds great promise for helping individuals with diseases with similar genetic bases, such as Fragile X syndrome and Huntington’s disease.

To learn about the different types of myotonic dystrophy, visit this NORD webpage.

In addition to this podcast host/producer who lives with Myotonic Dystrophy Type 1, the following podcast episodes have featured guests living with DM1, DM2, or caregivers in a DM family:

Food = Medicine

Passion and Motivation to Move through the Hard Stuff

Working with Wounded Warriors

Music Gives Me a Peace Bubble

Salute to Caregivers

Stories of Healing with Essential Oils

  continue reading

107 episod

Semua episod

×
 
Loading …

Selamat datang ke Player FM

Player FM mengimbas laman-laman web bagi podcast berkualiti tinggi untuk anda nikmati sekarang. Ia merupakan aplikasi podcast terbaik dan berfungsi untuk Android, iPhone, dan web. Daftar untuk melaraskan langganan merentasi peranti.

 

Panduan Rujukan Pantas

Podcast Teratas