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Kandungan disediakan oleh Emily Harrington. Semua kandungan podcast termasuk episod, grafik dan perihalan podcast dimuat naik dan disediakan terus oleh Emily Harrington atau rakan kongsi platform podcast mereka. Jika anda percaya seseorang menggunakan karya berhak cipta anda tanpa kebenaran anda, anda boleh mengikuti proses yang digariskan di sini https://ms.player.fm/legal.
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The Rush Family (Andrew Danner & Brook Cooper). Living in the Limbo of Hospice for their Twin Babies and Anticipating the End While Hopefully Researching.

1:18:43
 
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Manage episode 394271636 series 3324084
Kandungan disediakan oleh Emily Harrington. Semua kandungan podcast termasuk episod, grafik dan perihalan podcast dimuat naik dan disediakan terus oleh Emily Harrington atau rakan kongsi platform podcast mereka. Jika anda percaya seseorang menggunakan karya berhak cipta anda tanpa kebenaran anda, anda boleh mengikuti proses yang digariskan di sini https://ms.player.fm/legal.

Indianapolis transplants met as kids, but they didn't become a serious couple until Andrew rescued Brook from a traumatic relationship. This heroic foundation of care and love is ever present in this interview as Brook looks to Andrew for the medical details and Andrew looks to Brook for unconditional support.

Listen as the parents of four explain their identical twin boys D-bifunctional protein deficiency diagnosis. Simply put, they can't digest long-chain fatty acids. Tragically put, they are put in the "failure to thrive category." The longest child has lived with this diagnosis for 4 years and 1 month, with the average child living only two years. They openly discuss the decision to opt out of tracheostomies, the high cost of, well, everything, Andrew's 1 a.m. work schedule, the genetic probability with their current pregnancy **SPOILER**, not having any family close and the support from their church and school. If you want to help this deserving family, message me OR Venmo @Brook-Cooper-5 OR gofundme.com/f/eyubx7

I’d like to thank this episode’s sponsor, the U of I Community Credit Union. When you become a member at UICCU, you are becoming a partner by investing in the company's success, growth and focus on the local community. Auto, home and student loans, teen and kid-friendly accounts, investments and retirement planning. Visit uoficreditunion.org and follow on Instagram at uoficreditunion.

Thank you so much for listening! However your podcast host of choice allows, please positively: rate, review, comment and give all the stars! Don’t forget to follow, subscribe, share and ring that notification bell so you know when the next episode drops!

Also, search and follow hyperlocalscu on all social media. If I forgot anything or you need me, visit my website at HyperLocalsCU.com. Byee.

  continue reading

Bab

1. The Rush Family (Andrew Danner & Brook Cooper). Living in the Limbo of Hospice for their Twin Babies and Anticipating the End While Hopefully Researching. (00:00:00)

2. [Ad] Mindfully Gay Podcast (00:15:03)

3. (Cont.) The Rush Family (Andrew Danner & Brook Cooper). Living in the Limbo of Hospice for their Twin Babies and Anticipating the End While Hopefully Researching. (00:15:55)

153 episod

Artwork
iconKongsi
 
Manage episode 394271636 series 3324084
Kandungan disediakan oleh Emily Harrington. Semua kandungan podcast termasuk episod, grafik dan perihalan podcast dimuat naik dan disediakan terus oleh Emily Harrington atau rakan kongsi platform podcast mereka. Jika anda percaya seseorang menggunakan karya berhak cipta anda tanpa kebenaran anda, anda boleh mengikuti proses yang digariskan di sini https://ms.player.fm/legal.

Indianapolis transplants met as kids, but they didn't become a serious couple until Andrew rescued Brook from a traumatic relationship. This heroic foundation of care and love is ever present in this interview as Brook looks to Andrew for the medical details and Andrew looks to Brook for unconditional support.

Listen as the parents of four explain their identical twin boys D-bifunctional protein deficiency diagnosis. Simply put, they can't digest long-chain fatty acids. Tragically put, they are put in the "failure to thrive category." The longest child has lived with this diagnosis for 4 years and 1 month, with the average child living only two years. They openly discuss the decision to opt out of tracheostomies, the high cost of, well, everything, Andrew's 1 a.m. work schedule, the genetic probability with their current pregnancy **SPOILER**, not having any family close and the support from their church and school. If you want to help this deserving family, message me OR Venmo @Brook-Cooper-5 OR gofundme.com/f/eyubx7

I’d like to thank this episode’s sponsor, the U of I Community Credit Union. When you become a member at UICCU, you are becoming a partner by investing in the company's success, growth and focus on the local community. Auto, home and student loans, teen and kid-friendly accounts, investments and retirement planning. Visit uoficreditunion.org and follow on Instagram at uoficreditunion.

Thank you so much for listening! However your podcast host of choice allows, please positively: rate, review, comment and give all the stars! Don’t forget to follow, subscribe, share and ring that notification bell so you know when the next episode drops!

Also, search and follow hyperlocalscu on all social media. If I forgot anything or you need me, visit my website at HyperLocalsCU.com. Byee.

  continue reading

Bab

1. The Rush Family (Andrew Danner & Brook Cooper). Living in the Limbo of Hospice for their Twin Babies and Anticipating the End While Hopefully Researching. (00:00:00)

2. [Ad] Mindfully Gay Podcast (00:15:03)

3. (Cont.) The Rush Family (Andrew Danner & Brook Cooper). Living in the Limbo of Hospice for their Twin Babies and Anticipating the End While Hopefully Researching. (00:15:55)

153 episod

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