Episode 17: Robin’s Story
Manage episode 409705303 series 3528525
In this episode, Shaimond interviews Robin Davies who is totally blind and shares his journey with Best disease and Charles Bonnet Syndrome. The episode emphasizes resilience, the value of community and support, and how remaining engaged with life and passions can help navigate the challenges of visual impairment and Charles Bonnet syndrome.
Contact Robin at robindavies18@gmail.com
For help with Charles Bonnet Syndrome call 704-389-0160
Contact me at cbsyndromepodcast@gmail.com
For the link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and caregivers support group email Dr. Cusick at garymcusick@icloud.com
For the link to attend Pocklington Trust’s UK-based bi-weekly virtual CBS support group email Jonathan at Jonathan.Ward@pocklington.org.uk
To register to attend the Canadian based CNIB Monthly CBS support group please use the registration link below or contact Lucia Ricardo at lucia.ricardo@cnib.ca or 1-800-563-2642.
CNIB Support Group Registration
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