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Episode 111: Transforming ME/CFS Care
Manage episode 429143519 series 3560585
Kandungan disediakan oleh Haylie Pomroy. Semua kandungan podcast termasuk episod, grafik dan perihalan podcast dimuat naik dan disediakan terus oleh Haylie Pomroy atau rakan kongsi platform podcast mereka. Jika anda percaya seseorang menggunakan karya berhak cipta anda tanpa kebenaran anda, anda boleh mengikuti proses yang digariskan di sini https://ms.player.fm/legal.
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In this episode, I’m joined by Jaime Seltzer, Director of Scientific and Medical Outreach at the MEAction Network, to discuss the challenges faced by patients with ME/CFS and Long COVID and how it can be improved.
We explain how crucial patient-reported symptoms are for accurately diagnosing ME/CFS. We also talk about Jaime’s organization, the MEAction Network, and its efforts to transform clinical care and education.
We also tackle the complexities of post-viral conditions and the relationship between viral damage, immune responses, and genetic factors, and explore how symptoms vary in these conditions.
Tune in to this week’s episode of Fast Metabolism Matters: Transforming ME/CFS Care.
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Jaime Seltzer is the Director of Scientific and Medical Outreach at ME Action, a nonprofit advocating for those with chronic illnesses. She bridges communication between healthcare, government, and research sectors, representing ME Action globally. Additionally, Jaime collaborates with institutions like Stanford Medicine and Mayo Clinic Rochester on post-infectious chronic diseases research. She brings personal insight to her work as someone living with ME/CFS.
LinkedIn: https://www.linkedin.com/in/jaime-seltzer-b23abb14/
Twitter: https://twitter.com/exceedhergrasp1
Follow the MeAction Network.
Website: https://www.meaction.net/
Instagram: https://www.instagram.com/meactnet/
YouTube: https://www.youtube.com/c/MEActionNet
Facebook: https://www.facebook.com/MEActNet
LinkedIn: https://www.linkedin.com/company/-meaction-the-myalgic-encephalomyelitis-action-network-/
TikTok: https://www.tiktok.com/@meactnet
#MECFS #myalgicencephalomyelitis #chronicfatiguesyndrome #chronicfatigue #chronicillness #longCOVID #postCOVIDsyndrome #diagnosis #POTS #posturalorthostatictachycardiasyndrome #SARS #MERS #PEM
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