Episode 355: The NARCOMS Patient Registry with Dr. Robert Fox

RealTalk MS

Research is the engine that drives the future. And participating in MS research is not only vital to improving scientists' understanding of multiple sclerosis, it's also empowering. And the really good news is that you can participate in MS research from the comfort of your own home.

My guest this week is the Managing Director of the North American Research Committee on Multiple Sclerosis, Dr. Robert Fox. And we're taking a deep dive into the NARCOMS patient registry.

We'll also tell you about the latest version of AlphaFold, a highly advanced artificial intelligence model designed to help scientists design new drugs and target disease more effectively.

Evidence shows that the Epstein-Barr Virus (EBV) triggers MS. We're reviewing the results of a study that may help scientists better understand the relationship between EBV and MS.

The International Progressive MS Alliance upcoming webcast, Mobility Challenges in Progressive MS, takes place this Thursday, June 20th. Find out where you can register and why you won't want to miss this!

And we're just 6 weeks away from Crush MS, a fundraising event in Napa Valley, California that raises money to support MS research. I'll be there, and I hope you can join me! We're sharing all the details.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: The NARCOMS Patient Registry :22

The most advanced AI on earth is focused on discovering new medications 1:40

Researchers learn that Epstein-Barr Virus re-activates and drives inflammation during an MS relapse 4:00

The Progressive MS Alliance hosts a live global webcast this Thursday, June 20th! 7:17

Crush MS is just 6 weeks away 8:39

Dr. Robert Fox takes us on a deep dive into the NARCOMS patient registry 10:08

Share this episode 26:12

Next Week: A special conversation with National MS Society President and CEO, Cyndi Zagieboylo 26:33

Have you downloaded the free RealTalk MS app? 27:17

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

The NARCOMS Patient Registry https://www.narcoms.org

STUDY: Multiple Sclerosis Patient-Derived Spontaneous B Cells Have Distinct EBV and Host Gene Expression Profiles In Active Disease https://nature.com/articles/s41564-024-01699-6

REGISTER for the International Progressive MS Alliance Global Webcast: Mobility Challenges in Progressive MS https://msif.org/webcast-mobility

Get Tickets for Crush MS https://www.crushms.org

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

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RealTalk MS Episode 355 Guests: Dr. Robert Fox

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