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An Advocate's Journey to Put Patients at the Forefront of Research
Manage episode 428063150 series 3550750
Kandungan disediakan oleh Sanofi US Patient Advocacy. Semua kandungan podcast termasuk episod, grafik dan perihalan podcast dimuat naik dan disediakan terus oleh Sanofi US Patient Advocacy atau rakan kongsi platform podcast mereka. Jika anda percaya seseorang menggunakan karya berhak cipta anda tanpa kebenaran anda, anda boleh mengikuti proses yang digariskan di sini https://ms.player.fm/legal.
Patient advocacy groups have become a powerful force engaging with clinical researchers. The National Bleeding Disorders Foundation (NBDF) has been one of the best at driving a research agenda that matters to patients, yet they still saw areas for improvement. Maria Santaella, Vice President of Research Strategy at NBDF, realized the importance of including patient voices at the very start of and throughout the research process. This is what it takes to ensure researchers understand the unmet needs and complications people live with every day. Learn how NBDF evolved from supporting researchers to ensuring that the lived experience of people affected by bleeding disorders is truly at the center of research. In this episode, Sanofi host Eric Racine and co-host Jane Smith discuss with Maria how to get to the next level of integrating patient voices and evidence into research.
10 episod
Kongsi
