118: Gaining Patient Perspectives on Impact of Narcolepsy

NeurologyLive® Mind Moments®

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In this episode, Anne Marie Morse, DO, FAAN, a pediatric neurologist and sleep medicine specialist at Geisinger Medical Center, sat down at the 2024 SLEEP Annual Meeting to discuss a poster presentation highlighting a listening analysis that characterized the struggles and unmet needs of people with narcolepsy. in the discussion, Morse outlined some of the major findings, including the rates of missed and misdiagnosis, how cataplexy impacts daily life, and some of the other comorbidities associated with the condition. She spoke on the value of gaining patient perspectives and using their descriptions for their disorders helps in understanding true unmet needs. Furthermore, she spoke on the importance of a strong patient-clinician relationship, the ability to communicate openly, and the steps following diagnosis to ensure effective long-term treatment outcomes.
Looking for more sleep disorders discussion? Check out the NeurologyLive® sleep disorders clinical focus page.
Episode Breakdown:

• 1:10 – Motivations behind conducting listening analysis
• 3:15 – Major clinical takeaways from study; notable quality of life impairments in narcolepsy
• 7:00 – Impact of cataplexy and patients' overreaction
• 9:50 – Neurology News Minute
• 12:20 – Reasons for missed and misdiagnosis
• 14:50 – Early tips to pathing patients towards treatment success

The stories featured in this week's Neurology News Minute, which will give you quick updates on the following developments in neurology, are further detailed here:

• FDA Grants Traditional Approval to Elevidys Gene Therapy for Ambulatory DMD, Accelerated Approval for Nonambulatory Patients

• FDA Approves Efgartigimod as New Treatment for Chronic Inflammatory Demyelinating Polyneuropathy

• FDA Approves Pitolisant for Excessive Daytime Sleepiness in Pediatric Narcolepsy

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