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125: World FSHD Day Special
Manage episode 424639599 series 3410030
Kandungan disediakan oleh FSHD Straight Talk. Semua kandungan podcast termasuk episod, grafik dan perihalan podcast dimuat naik dan disediakan terus oleh FSHD Straight Talk atau rakan kongsi platform podcast mereka. Jika anda percaya seseorang menggunakan karya berhak cipta anda tanpa kebenaran anda, anda boleh mengikuti proses yang digariskan di sini https://ms.player.fm/legal.
It’s World FSHD Day! To celebrate today, Tim Hollenback, FSHD Straight Talk host, talks with: Ricardo Gerpe from FSHD Spain; Chelsea Moeller from the FSHD Society; Rick & Terry Colella from Friends of FSH Research; Jennifer Cherniwchan or the Alberta Chapter; Chris Carrino, announcer for the Brooklyn Nets and founder of the Chris Carrino Foundation for FSHD; and volunteer Priscilla Sharun.
For more information about World FSHD, please visit the FSHD Society website.
If you would like to share your experiences living with FSHD, please reach out via email or send us a message on social media.
Email: FSHDRadio@FSHDSociety.Org
For more information about World FSHD, please visit the FSHD Society website.
If you would like to share your experiences living with FSHD, please reach out via email or send us a message on social media.
Email: FSHDRadio@FSHDSociety.Org
140 episod
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