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113: Project Mercury, A Global Effort in FSHD Treatment Delivery
Manage episode 392098717 series 3410030
Kandungan disediakan oleh FSHD Straight Talk. Semua kandungan podcast termasuk episod, grafik dan perihalan podcast dimuat naik dan disediakan terus oleh FSHD Straight Talk atau rakan kongsi platform podcast mereka. Jika anda percaya seseorang menggunakan karya berhak cipta anda tanpa kebenaran anda, anda boleh mengikuti proses yang digariskan di sini https://ms.player.fm/legal.
In this episode, join Tim as we wrap up the year with a profound discussion on the future of FSHD treatment and advocacy. Guest Ken Kahtava, Chief Business Officer of the FSHD Society, delves into Project Mercury, a groundbreaking initiative aiming to revolutionize access to therapies, improve clinical trials, and engage the FSHD community globally. From disease progression modeling to the collective power of global patient registries, this episode highlights the innovative strategies paving the way for a hopeful future in FSHD treatment.
140 episod
Kongsi
