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4: Life with homocystinuria (HCU): Colbie, Cayle and parents Cole and Sarah
Manage episode 314776173 series 2989272
Kandungan disediakan oleh Caring for Rare: Stories of Rare Metabolic Disorders and Nutricia North America. Semua kandungan podcast termasuk episod, grafik dan perihalan podcast dimuat naik dan disediakan terus oleh Caring for Rare: Stories of Rare Metabolic Disorders and Nutricia North America atau rakan kongsi platform podcast mereka. Jika anda percaya seseorang menggunakan karya berhak cipta anda tanpa kebenaran anda, anda boleh mengikuti proses yang digariskan di sini https://ms.player.fm/legal.
Siblings Colbie (11) and Cayle (9) were diagnosed with homocystinuria (HCU), a rare inborn error of metabolism, when they were young children. With their parents Cole and Sarah, they share their feelings on HCU. Cole and Sarah talk about the early days of adjusting to diet management and their journey to accepting HCU and focusing on all that Colbie and Cayle can do.
This episode was produced by Alletta Cooper, Ulrike Reichert, and Kate Miley for Nutricia North America. The music featured in this episode is Look Inside by Sirus Music, Endless Story by Nick Petrov, and Everything's OK by Porter Productions.
Contact us at NutritionServices@nutricia.com or NutriciaMetabolics.com
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