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Welcome to Remarkable!
Manage episode 327335877 series 3222835
Kandungan disediakan oleh Tracey Hoyng. Semua kandungan podcast termasuk episod, grafik dan perihalan podcast dimuat naik dan disediakan terus oleh Tracey Hoyng atau rakan kongsi platform podcast mereka. Jika anda percaya seseorang menggunakan karya berhak cipta anda tanpa kebenaran anda, anda boleh mengikuti proses yang digariskan di sini https://ms.player.fm/legal.
Welcome to Remarkable - a podcast about the families all over the world, who love someone with Rett Syndrome.
Rett Syndrome is a rare neurodevelopmental, genetic disorder that is caused by mutations on the X chromosome on a gene called MECP2. It causes problems in brain function, and that in turn effects every part of the body - from breathing, to walking, talking, digestion and beyong. There is no current cure for Rett Syndrome.
I will be working with some amazing Rett Syndrome families to bring you the rest of the podcast series closer to October 2019, so I hope you stick around - tell your friends - subscribe and keep in touch. Awareness is built by the community around us, so I thank you for listening and we will be back soon with stories about life with Rett Syndrome.
You can find out more about our family at www.teamjovie.com
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