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Nthabeleng Paulette Ramoeli, Patient advocate
Manage episode 358216813 series 2922340
Kandungan disediakan oleh The Health Design Podcast and Moyez Jiwa. Semua kandungan podcast termasuk episod, grafik dan perihalan podcast dimuat naik dan disediakan terus oleh The Health Design Podcast and Moyez Jiwa atau rakan kongsi platform podcast mereka. Jika anda percaya seseorang menggunakan karya berhak cipta anda tanpa kebenaran anda, anda boleh mengikuti proses yang digariskan di sini https://ms.player.fm/legal.
Ramoeli was born in Lesotho, a country encircled by South Africa, and lives with Ehlers-Danlos syndromes and many other comorbid conditions. This young woman relentlessly fights for improved access to health care for rare disease patients in her home country and shares the story of her path to the diagnosis of EDS diagnosis in the context of a place where healthcare resources cannot be taken for granted. She established an NGO to help all rare disease patients in Lesotho.
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