Artwork

Kandungan disediakan oleh Information and Privacy Commissioner of Ontario and Privacy Commissioner of Ontario. Semua kandungan podcast termasuk episod, grafik dan perihalan podcast dimuat naik dan disediakan terus oleh Information and Privacy Commissioner of Ontario and Privacy Commissioner of Ontario atau rakan kongsi platform podcast mereka. Jika anda percaya seseorang menggunakan karya berhak cipta anda tanpa kebenaran anda, anda boleh mengikuti proses yang digariskan di sini https://ms.player.fm/legal.
Player FM - Aplikasi Podcast
Pergi ke luar talian dengan aplikasi Player FM !

Ethical Uses of Genetic Data: A Conversation with Dr. Bartha Knoppers | Les utilisations éthiques des données génétiques : entretien avec Bartha Knoppers, Ph. D.

39:55
 
Kongsi
 

Manage episode 372686228 series 3375253
Kandungan disediakan oleh Information and Privacy Commissioner of Ontario and Privacy Commissioner of Ontario. Semua kandungan podcast termasuk episod, grafik dan perihalan podcast dimuat naik dan disediakan terus oleh Information and Privacy Commissioner of Ontario and Privacy Commissioner of Ontario atau rakan kongsi platform podcast mereka. Jika anda percaya seseorang menggunakan karya berhak cipta anda tanpa kebenaran anda, anda boleh mengikuti proses yang digariskan di sini https://ms.player.fm/legal.

Dr. Bartha Maria Knoppers is a world-renowned expert and pioneer in the field of health law and bioethics, with particular focus on genomics. Her groundbreaking work has fundamentally changed our understanding of the complex intersection between science law, technology and ethics. She currently serves as the Director of the Centre for Genomics and Policy at McGill University, collaborating with international organizations, governments and policymakers to help shape ethical guidelines that safeguard human rights while supporting the health and well-being of individuals and communities.

  • Genetic exceptionalism [03:46]
  • Use of genetic information in healthcare [05:50]
  • Genome sequencing and predicting health outcomes [6:23]
  • Parental consent for newborn screening [10:45]
  • Privacy considerations for genomic sequencing for health research [12:39]
  • Biobanks and the use of data for health research [14:45]
  • Governance, transparency, and accountability in health research [18:40]
  • Considerations for data sharing among academic and commercial researchers [20:41]
  • P3G public population project in Genomics and Society [24:05]
  • The Global Alliance for Genomics and Health (Canada) [26:58]
  • Canadian Health Data Strategy [29:11]
  • Canada Health Data Charter [33:10]
  • Advice on promoting trust in digital health [35:07]

Resources:

Info Matters is a podcast about people, privacy, and access to information hosted by Patricia Kosseim, Information and Privacy Commissioner of Ontario. We dive into conversations with people from all walks of life and hear stories about the access and privacy issues that matter most to them.

If you enjoyed the podcast, leave us a rating or a review.

Have an access to information or privacy topic you want to learn more about? Interested in being a guest on the show? Send us a tweet @IPCinfoprivacy or email us at podcast@ipc.on.ca.

The information, opinions, and recommendations presented in this podcast are for general information only. It should not be relied upon as a substitute for legal advice. Unless specifically stated otherwise, the IPC does not endorse, approve, recommend, or certify any information, product, process, service, or organization presented or mentioned in this podcast, and information from this podcast should not be used or reproduced in any way to imply such approval or endorsement. None of the information, opinions and recommendations presented in this podcast bind the IPC’s Tribunal that may be called upon to independently investigate and decide upon an individual complaint or appeal based on the specific facts and unique circumstances of a given case.

The information, opinions, and recommendations presented in this podcast are for general information only. It should not be relied upon as a substitute for legal advice. Unless specifically stated otherwise, the IPC does not endorse, approve, recommend, or certify any information, product, process, service, or organization presented or mentioned in this podcast, and information from this podcast should not be used or reproduced in any way to imply such approval or endorsement. None of the information, opinions and recommendations presented in this podcast bind the IPC’s Tribunal that may be called upon to independently investigate and decide upon an individual complaint or appeal based on the specific facts and unique circumstances of a given case.

  continue reading

39 episod

Artwork
iconKongsi
 
Manage episode 372686228 series 3375253
Kandungan disediakan oleh Information and Privacy Commissioner of Ontario and Privacy Commissioner of Ontario. Semua kandungan podcast termasuk episod, grafik dan perihalan podcast dimuat naik dan disediakan terus oleh Information and Privacy Commissioner of Ontario and Privacy Commissioner of Ontario atau rakan kongsi platform podcast mereka. Jika anda percaya seseorang menggunakan karya berhak cipta anda tanpa kebenaran anda, anda boleh mengikuti proses yang digariskan di sini https://ms.player.fm/legal.

Dr. Bartha Maria Knoppers is a world-renowned expert and pioneer in the field of health law and bioethics, with particular focus on genomics. Her groundbreaking work has fundamentally changed our understanding of the complex intersection between science law, technology and ethics. She currently serves as the Director of the Centre for Genomics and Policy at McGill University, collaborating with international organizations, governments and policymakers to help shape ethical guidelines that safeguard human rights while supporting the health and well-being of individuals and communities.

  • Genetic exceptionalism [03:46]
  • Use of genetic information in healthcare [05:50]
  • Genome sequencing and predicting health outcomes [6:23]
  • Parental consent for newborn screening [10:45]
  • Privacy considerations for genomic sequencing for health research [12:39]
  • Biobanks and the use of data for health research [14:45]
  • Governance, transparency, and accountability in health research [18:40]
  • Considerations for data sharing among academic and commercial researchers [20:41]
  • P3G public population project in Genomics and Society [24:05]
  • The Global Alliance for Genomics and Health (Canada) [26:58]
  • Canadian Health Data Strategy [29:11]
  • Canada Health Data Charter [33:10]
  • Advice on promoting trust in digital health [35:07]

Resources:

Info Matters is a podcast about people, privacy, and access to information hosted by Patricia Kosseim, Information and Privacy Commissioner of Ontario. We dive into conversations with people from all walks of life and hear stories about the access and privacy issues that matter most to them.

If you enjoyed the podcast, leave us a rating or a review.

Have an access to information or privacy topic you want to learn more about? Interested in being a guest on the show? Send us a tweet @IPCinfoprivacy or email us at podcast@ipc.on.ca.

The information, opinions, and recommendations presented in this podcast are for general information only. It should not be relied upon as a substitute for legal advice. Unless specifically stated otherwise, the IPC does not endorse, approve, recommend, or certify any information, product, process, service, or organization presented or mentioned in this podcast, and information from this podcast should not be used or reproduced in any way to imply such approval or endorsement. None of the information, opinions and recommendations presented in this podcast bind the IPC’s Tribunal that may be called upon to independently investigate and decide upon an individual complaint or appeal based on the specific facts and unique circumstances of a given case.

The information, opinions, and recommendations presented in this podcast are for general information only. It should not be relied upon as a substitute for legal advice. Unless specifically stated otherwise, the IPC does not endorse, approve, recommend, or certify any information, product, process, service, or organization presented or mentioned in this podcast, and information from this podcast should not be used or reproduced in any way to imply such approval or endorsement. None of the information, opinions and recommendations presented in this podcast bind the IPC’s Tribunal that may be called upon to independently investigate and decide upon an individual complaint or appeal based on the specific facts and unique circumstances of a given case.

  continue reading

39 episod

Semua episod

×
 
Loading …

Selamat datang ke Player FM

Player FM mengimbas laman-laman web bagi podcast berkualiti tinggi untuk anda nikmati sekarang. Ia merupakan aplikasi podcast terbaik dan berfungsi untuk Android, iPhone, dan web. Daftar untuk melaraskan langganan merentasi peranti.

 

Panduan Rujukan Pantas

Podcast Teratas