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Kandungan disediakan oleh Gluten-Free Guide Channel. Semua kandungan podcast termasuk episod, grafik dan perihalan podcast dimuat naik dan disediakan terus oleh Gluten-Free Guide Channel atau rakan kongsi platform podcast mereka. Jika anda percaya seseorang menggunakan karya berhak cipta anda tanpa kebenaran anda, anda boleh mengikuti proses yang digariskan di sini https://ms.player.fm/legal.
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The Gluten-Free Guide
Tandakan semua sebagai (belum) dimainkan
Manage series 3229705
Kandungan disediakan oleh Gluten-Free Guide Channel. Semua kandungan podcast termasuk episod, grafik dan perihalan podcast dimuat naik dan disediakan terus oleh Gluten-Free Guide Channel atau rakan kongsi platform podcast mereka. Jika anda percaya seseorang menggunakan karya berhak cipta anda tanpa kebenaran anda, anda boleh mengikuti proses yang digariskan di sini https://ms.player.fm/legal.
The latest information from medical and nutrition experts about living with celiac disease and managing a gluten-free lifestyle!
…
continue reading
71 episod
Tandakan semua sebagai (belum) dimainkan
Manage series 3229705
Kandungan disediakan oleh Gluten-Free Guide Channel. Semua kandungan podcast termasuk episod, grafik dan perihalan podcast dimuat naik dan disediakan terus oleh Gluten-Free Guide Channel atau rakan kongsi platform podcast mereka. Jika anda percaya seseorang menggunakan karya berhak cipta anda tanpa kebenaran anda, anda boleh mengikuti proses yang digariskan di sini https://ms.player.fm/legal.
The latest information from medical and nutrition experts about living with celiac disease and managing a gluten-free lifestyle!
…
continue reading
71 episod
Semua episod
×Parents are really good at asking doctors questions about their kid's health, but do we always let our kids speak up and ask what's on their mind? Today we are letting them do just that! We have a very special episode that features some of our loyal podcast listeners…all adorable kids who have some burning questions for doctors about celiac disease and the gluten-free diet. And of course, we have two fabulous physicians joining us to answer these questions, Dr. Danny Mallon, the director of the Celiac Disease Program at Cincinnati Children’s Hospital and Dr. Ritu Verma, the director of the Celiac Disease Center at the University of Chicago.…
1 POTS and Celiac Disease. What's the Link? 56:00
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56:00Our podcasts about research are often are the most popular, so hopefully today’s will also deliver. Today’s topic explores another often-misunderstood condition Postural Tachycardia Syndrome or (POTS) as it often called - and its possible connection to celiac disease. This is a condition that presents with a variety of symptoms that can be difficult to diagnose – like chronic fatigue, lightheadedness, fainting, an uncomfortable, rapid increase in heartbeat when standing up, and a range of GI symptoms. POTS has even been referred to as the “invisible disease.” Today we want to discuss the gastrointestinal symptoms associated with this condition and its possible link with celiac disease. We have a team of fantastic experts with us here in the studio to help us better understand POTS and the studies linking it to celiac disease. We have Dr. Jeffrey Moak, the director of electrophysiology and pacing in the department of cardiology at Children’s National Hospital and Dr. Jocelyn Silvester, the director of research for the Celiac Program at Boston Children’s Hospital. Studies referred to during the episode https://jnnp.bmj.com/content/jnnp/76/4/579.full.pdf https://pubmed.ncbi.nlm.nih.gov/25554987/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6314490/ https://www.ahajournals.org/doi/10.1161/JAHA.119.013602 Thank you to the Global Autoimmune Institute for their ongoing support to make this podcast possible.…
1 Hot Topics at the 2020 Columbia Celiac Symposium 22:00
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22:00Today we are talking about the recent Celiac Disease Symposium at the Columbia Celiac Disease Center. This biennial event hosts two forums, one scientific and one clinical, and attracts, researchers, physicians, patients, parents, and nutritionists from around the world. It’s an amazing time to come together to learn, see old friends and make some new ones. Unfortunately, this year because of the Corona virus, the conference had a last-minute shift and only the speakers were able to gather in New York City. Thankfully the organizers (Dr. Peter Green and his team) were able to set up a web-based service so that the attendees could tune in via live stream and still partake in the incredible sharing of knowledge. Since we know many of our listeners were unable to attend, we are going to do a recap of the conference today on the podcast and talk about some of the big topics with one of our favorite guests, Dr. Jocelyn Silvester from Boston Children’s Hospital. Thank you to the Global Autoimmune Institute for their ongoing support to make this podcast possible.…
1 Is a Gluten-Free Diet More Aspirational Than Achievable? 17:00
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17:00Todays’ topic is about the recent “Doggie Bag” study published in the journal Gastroenterology, that suggests that a truly “gluten-free diet may be more aspirational than achievable.” We talk a lot about strict gluten-free diets on the podcast, but this study points out that even at our strictest, we may still be exposed to gluten. To help us better understand why this is and what it means for the future of patients with celiac disease, we have Dr. Jocelyn Silvester from Boston Children’s Hospital in the studio. Dr. Silvester is the lead researcher on the study and one of our favorite podcast guests!…
1 Narrowing the Gap in Health Education in Celiac Disease 39:00
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39:00Education is really important when it comes to living with a chronic disease. With celiac disease, patients and their families have to keep up reading food labels, new food products, changing food products, drug development, and research. Medical providers have to stay current on new testing methods, guidelines for managing the disease, and all of the food stuff too in order to help patients manage the gluten-free diet. It’s a lot! On this episode of the podcast, we're sitting down with Dr. Alan Leichtner, the Chief Medical Education Officer at Boston Children’s Hospital to discuss celiac disease education. He’s going to talk to us about education of patients and families as well as education of medical professionals…and he’s going to answer some of our listener questions about what to do if you think your doctor needs a little beefing up on celiac disease! Links we talk about on the episode: NASPGHAN Clinical Guide: https://naspghan.org/professional-resources/medical-professional-resources/celiac-disease/ Evidence-Informed Recommendations for the Management of Celiac Disease in Children: https://pediatrics.aappublications.org/content/138/3/e20153147Celiac Disease Foundation: https://celiac.org/about-celiac-disease/what-is-celiac-disease/…
Food bullying. It can range from teasing others at school or online in social media groups, to kids throwing bread at children with celiac disease. In many cases it’s parents that are doing the bullying...But how do you address this problem? As the issue has come up numerous times in the past few weeks in our Celiac Clinic at Children's National Hospital, we wanted to address it on the podcast. Joining Vanessa in the studio are two of the CNMC community education specialists, Kate Raber and Joyana McMahon. Links in Episode: The Princess and the Peanut Allergy: https://www.amazon.com/Princess-Peanut-Allergy-Wendy-McClure/dp/0807566233Can I Have Some Cake Too? https://www.amazon.com/Have-Story-about-Allergies-Friendship/dp/1935914286What Treat Can Ruben Eat? https://www.amazon.com/What-Treat-Can-Ruben-Eat/dp/1481753762Pediatrics study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3529950/…
1 Gluten-Free Travel Finds with Leslie Bari of Gluten-Free Finds PA 16:00
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16:00Today’s topic is an always popular one. We all love to travel, it’s one of the best parts of life. But doing so is a bit more complicated while following a gluten-free lifestyle. Today we have an expert to share some of her favorite tips for gluten-free travel. Leslie Bari is the founder of Gluten Free Finds PA and the Constitutional Walking Tour. She loves to find and share her gluten-free finds and travel tips with her readers and has built quite a community doing so. We’re so happy to have her join us today to share some of her travel wisdom!…
1 Social Media and Celiac. Has Facebook Become Your Doctor? 21:00
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21:00Most of us use social media in one way or another to connect with family, friends, and other communities that enrich our lives. But sometimes social media groups present information about medical conditions that is just wrong. It's frightening that some people might take online posts as fact instead of talking to their doctor or other health care professional. To help us talk about these issues we have a wonderful group here in the studio…Our Children's National Community Education Specialist Joyana McMahon….and one of our amazing board members Maureen Basye, who is a mom to a child with celiac disease and the founder of Celiac Cruise. Thank you to the Walter and Jean Boek Global Autoimmune Institute for their ongoing support to make this podcast possible.…
1 New Celiac Treatment Passes Phase 2 Clinical Trial 16:00
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16:00Do we have a new drug for celiac disease? Results of a new phase 2 clinical trial using technology developed at Northwestern university showed that it is possible to induce immune tolerance to gluten in individuals with celiac disease. The researchers suggest that their findings may pave the way for treated celiac patients to eventually tolerate gluten in their diet. As we are writing these these words we can hear our listener around the world cheering for joy that there may be a magic pill to take that will allow them to eat gluten. But is that really the case? To help us better understand what this new drug is and how it might help patients with celiac disease, we have Dr. Jocelyn Silvester from Boston Children’s Hospital in the studio. Dr. Silvester is a leading celiac disease research in the United States and Canada and one of our favorite podcast guests! Thank you to the Walter and Jean Boek Global Autoimmune Institute for their ongoing support to make this podcast possible.…
1 Celiac Research - What Patients Should Do with New Information 13:00
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13:00Today’s topic is going to follow up on the influx of research and proclamations about the future of celiac disease. How do we as patients learn how to process the relevance of research in our own lives? How do we know what is important for us? How do we understand the significance of research and how it could potentially affect us? To discuss this topic with us, we have Dr. Ritu Verma from the University of Chicago Celiac Disease Center. Dr. Verma is a leading expert in celiac disease and is passionate about integrating current research and therapies in clinical care to provide the most innovative treatments for patients. Dr. Verma sat down for this conversation with one of our podcast co-hosts Ellen Wilcox at the recent DC Gluten-Free Education Day. Thank you to the Walter and Jean Boek Global Autoimmune Institute for their ongoing support to make this podcast possible.…
1 Hot Topics from the International Celiac Disease Symposium 42:00
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42:00There was so much knowledge, research, and collaboration at the 2019 International Celiac Disease Symposium in Paris, France. To breakdown some of the major themes from the conference, Vanessa has three experts in the studio: Dr. Jocelyn Silvester from Boston Children's Hospital, Dr. Ritu Verma from the University of Chicago Celiac Disease Center, and Dr. Benny Kerzner from Children's National Medical Center. After the group shares some of the big takeaways from the conference, they dive into a discussion about the gluten-free bakery tour they went on with a group of pediatric gastroenterologists from around the United States. Here were their favorites spots: Helmut Newcake: http://www.helmutnewcake.com/ Chambelland: https://chambelland.com/en/ Yummy and Guilt-Free: https://www.yummyandguiltfree.com/ Thank you to the Walter and Jean Boek Global Autoimmune Institute for their ongoing support to make this podcast possible.…
1 A Look at Developments in Psycho-Gastroenterology 44:00
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44:00The field of psychology and how it relates to gastroenterology is rapidly expanding and today we are going to talk all about it...or more specifically, psycho-gastroenterology. To explain the intricacies of this unique field, we’ve got Dr. Shayna Coburn from our Celiac Disease Program at Children’s National in the studio. Dr. Coburn runs the psychological services for our Program which includes offering consultations and empirically-supported interventions to help families navigate the challenges of diagnosis of celiac disease and management of the gluten-free diet. She also lives a gluten-free lifestyle herself, so she is very equipped to help navigate this topic! During the episode we talk about three resources. Here are the links: Psychology Today Find a Psychologist: https://www.psychologytoday.com/us Celiac and Psychology Free Online Continuing Education Program: http://www.celiacpsychce.org/ Rome Foundation Psycho-Gastroenterology Directory: https://romegipsych.org Thank you to the Walter and Jean Boek Global Autoimmune Institute for their ongoing support to make this podcast possible.…
One of the most difficult times to be diagnosed with celiac disease is during your teen years. We see patients at Children's National on a regular basis in the clinic struggling with the challenges of being a teenager and dealing with the gluten-free diet at the same time. To help our teens feel more connected and supported, we have our awesome teen mentor Chloe in the studio with us. One of Chloe's summer projects was working on a guide for teens and she's here to talk all about it!…
1 Hot Topics at Digestive Disease Week - Episode 2 24:00
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24:00There were hundreds of presentations at Digestive Disease Week and Vanessa and Sandy were there for many of them. They've pulled together some of their favorites and in this episode are talking about a lively debate between Dr. Edwin Liu from Colorado Children's Hopital and Dr. Benjamin Lebwohl from Columbia University's Celiac Disease Center about the pros and cons of mass screening for celiac disease. Additionally they dive into a study looking at the economic impact of celiac disease in regards to health care utilization, and the reliabilty of patients predicting a gluten exposure. It's a fabulous episode! Thank you to the Walter and Jean Boek Global Autoimmune Institute for their ongoing support to make this podcast possible.…
1 Live from Digestive Disease Week - Celiac Patients Deserve a Medication 17:00
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17:00Vanessa and Sandy are live at Digestive Disease Week meeting with doctors, researchers and patient advocacy groups about the latest and greatest developments about celiac disease and related autoimmune conditions. In this Live from Digestive Disease Week episode they sit down with Dr. Jocelyn SIlvester from Boston Children's Hospital to discuss a quote from Dr. Peter Green, "Patients with celiac disease deserve a medication." Tune in to see what they have to say about this bold statement and very hot topic!…
1 Variance in Reasons for Adhering to a Gluten-Free Diet at School 22:00
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22:00Today’s podcast hits on an important topic that comes up regularly in the media. We hear lots of news reports about people going on a gluten-free diet when they don’t need to be medically. We most often think about this as happening in adults, but a study led by a team of researchers at the Mayo Clinic now reports this is happening amongst school age children as well. To share more with our listeners about this controversial topic, I have Dr. Imad Absah in the studio with me. Dr. Absah is a pediatric gastroenterologist at the Mayo Clinic and a leader of the Gluten-Free Diet in School Aged Children in Olmsted County, Minnesota study that was published in the Avicenna Journal of Medicine. Thank you to the Walter and Jean Boek Global Autoimmune Institute for their ongoing support to make this podcast possible.…
1 Benefits and Barriers of Using a Gluten Sensing Device 37:00
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37:00We're certain that many of our listeners have heard the debates about the merits and downfalls of having a gluten sensing device, like Nima. Do they actually provide peace of mind or make users even more anxious? And, do they really work? We're here today to discuss the results of a recent study that measures exactly that. To share more with our listeners about this controversial topic, I have Dr. Randi Wolf in the studio with me. Dr. Wolf is a faculty member and researcher at Teachers College at Columbia University. She was a leader of the Benefits and Barriers to Portable Gluten Detection study that was published in a recent issue of the journal Clinical Gastroenterology and Hepatology. To learn more about the Celiac Disease Center at Columbia University Irving Medical Center and find information about various studies underway, please visit: celiacdiseasecenter.columbia.edu. Thank you to the Walter and Jean Boek Global Autoimmune Institute for their ongoing support to make this podcast possible. Photo Credit: NIMA Website: https://nimasensor.com/blog/…
1 Schools and Gluten-Free Food - Navigating the System 20:00
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20:00This week's podcast is about an issue we see frequently in the Celiac Clinic at Children's National. Getting access to safe gluten-free food in schools. For the last 10 years, our Celiac Program has worked with patients and families to set up accommodations in schools and there is a huge range in the availability and accommodations offered in the school districts local to us here in Washington DC, Maryland and Virginia, but also around the country. Listen in as Vanessa and Joyana discuss gluten-free food in schools and how to gain access to options for your child through setting up a 504 plan. Thank you to the Walter and Jean Boek Global Autoimmune Institute for their ongoing support to make this podcast possible.…
Today’s podcast is an exciting one. We've talked about gluten-free traveling before and the risks associated with it. But today we're going to discuss an almost entirely carefree travel opportunity. Can you even imagine boarding a cruise ship where you know they are stocked up with gluten-free options? To share more with our listeners about this amazing opportunity, we have Maureen Basye in the studio. Maureen is a celiac travel specialist and the founder of the inaugural gluten-free cruise with Royal Caribbean Cruise Lines. Now, in full disclosure, Maureen asked Vanessa to be a speaker on the trip, so if you end up joining us, you’ll get to hang out with her too! To learn more about the voyage, please visit www.celiaccruise.com Thank you to the Walter and Jean Boek Global Autoimmune Institute for their ongoing support to make this podcast possible.…
1 The Link Between the Microbiome, the Gut and the Brain 38:00
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38:00Today’s podcast is going to shed light on the concept of the microbiome and its possible link to the brain and disorders like dementia and Parkinson's. For years we've heard that our diets could possibly be linked to different diseases...but connections between our guts and our brains? How can that be? To help our listeners better understand what the microbiome really is and these possible connections to brain disorders, we have Dr. Aline Charabaty in the studio. Dr. Charabaty is the Director of the Center for Inflammatory Bowel Disease at Sibley Memorial Hospital - Johns Hopkins School of Medicine in Washington, DC and very knowledgeable on the microbiome. Thank you to the Walter and Jean Boek Global Autoimmune Institute for their ongoing support to make this podcast possible.…
1 New Test to Diagnose Celiac Disease with No Gluten Challenge 23:00
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23:00Today’s podcast is about advances in new ways to diagnose celiac disease. One thing we struggle a lot with is making sure that people are getting a proper celiac disease diagnosis before starting a gluten-free diet. Often times patients will go on a gluten-free diet to try it out to see if symptoms improve…they all of a sudden feel great so go to the doctor to get tested, only to learn that they can’t actually get tested for celiac unless they are eating gluten…..But a new test is hoping to change that by allowing for celiac screening while someone is on a gluten-free diet. To help our listeners better understand this new test, we have Dr. Jocelyn Silvester…a gastroenterologist from Boston Children’s Hospital in the studio with us today. Dr. Silvester is a true leader in the celiac disease community and is working on new research herself about the future of diagnostic tests. Thank you to the Walter and Jean Boek Global Autoimmune Institute for their ongoing support to make this podcast possible.…
Today's podcast is dedicated to our wonderful patients and families at Children's National. A few months ago, we did a Hot Topics podcast answering some of the most common questions we hear in the Clinic. That podcast was so well-received, we wanted to follow up with another one. So, we asked you all to email us your questions and you definitely did! Here are all of the answers! Thank you to the Walter and Jean Boek Global Autoimmune Institute for their ongoing support to make this podcast possible.…
Today’s podcast is about a topic that that is very important in the lives of people with celiac….genetics. Close to 40 percent of the population in America carries these genes, but only 3 percent of them go on to develop celiac...why would they do so? And, we have lots of families who regularly ask us if they carry the gene if they should just go gluten-free to prevent getting celiac disease. Is this right? To help our listeners better understand celiac genetic testing, I have Dr. Benny Kerzner in the studio with me. Dr. Kerzner is not only a leader in the global celiac disease community, but the also the medical director of our Celiac Program here at Children’s National. Thank you to the Walter and Jean Boek Global Autoimmune Institute for their ongoing support to make this podcast possible.…
1 Globally Gluten-Free! G-Free Dining Destinations Around the World 32:00
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32:00Traveling is such an incredible part of life. There are so many sights around the world and thankfully, there are also lots of places with amazing gluten-free options. To discuss some of the best (and worst) destinations, we've got the Gluten-Free Globetrotter Erin Smith! She's an avid travler and has lots of wisdom to pass along! Thank you to the Walter and Jean Boek Global Autoimmune Institute for their ongoing support to make this podcast possible.…
1 Budget Bytes! Tips for Saving Money with a Gluten-Free Diet 24:00
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24:00With $6.00 loaves of bread and pasta that's double the price as it's gluten-containing counterparts, sticking to a gluten-free diet can become quite an expensive task. To help our listeners keep some extra change in their pockets, we've got Beth Moncel of Budget Bytes in the studio today to discuss lots of money saving tips for gluten-free consumers. Thank you to the Walter and Jean Boek Global Autoimmune Institute for their ongoing support to make this podcast possible.…
1 Gluten-Free Meal Delivery Services Part II 27:00
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27:00Today’s podcast is all about meal delivery services. For those of you who have been listening since the beginning of our Podcast, you may remember the one last spring where we talked about Hello Fresh, Blue Apron and Terras Kitchen. We received so many great comments about that episode that we decided to do an update and include even more services that offer gluten-free meal delivery options including Plated and Sunbasket. We know how busy you all are and how helpful it can be to find some convenient options to make the hectic dinner process a little bit easier. Thank you to the Walter and Jean Boek Global Autoimmune Institute for their ongoing support to make this podcast possible.…
1 Gluten Contamination at School - Is It Possible 13:00
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13:00Can kids be exposed to gluten at school? During this week's podcast, Vanessa and Joyana discuss an exciting project that hopes to determine the potential levels of gluten exposure for kids with celiac disease in a school setting. Thank you to the Walter and Jean Boek Global Autoimmune Institute for their ongoing support to make this podcast possible.…
1 Pregnancy Complications and Celiac Disease 21:00
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21:00Today’s podcast is about how celiac disease may affect pregnancy for women. Our guest is the Dr. Louise Grode from the Department of Medicine at Horsens Regional Hospital in Denmark who is the lead author on a new study published in the journal Human Reproduction. The study team looked at the chance and timing of pregnancy as well as potential complications including live and stillbirths, molar and ectopic pregnancies and miscarriages, and found an increased risk of stillbirths and miscarriages in women with undiagnosed celiac disease. We are so excited to have Dr. Grode join us to talk about this important research and how women with celiac disease can plan to have successful pregnancies. Thank you to the Walter and Jean Boek Global Autoimmune Institute for their ongoing support to make this podcast possible.…
1 Parenting a Child with Celiac Disease 29:00
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29:00Today’s podcast is all about parenting a child with celiac disease. We know this is a super important topic to many of our listeners - you're working everyday to help your kids understand the lifelong need for a gluten-free diet and how to navigate different social situations. Thankfully there are many parents who have gone through this already and two of them are joining us in the studio today to talk about their journey of raising kids with celiac disease. We have Katie Rothenberg who is mom to 7-year-old Nadia and Jon Landy who is dad to a teenager, Matthew. Both are members of the Celiac Program Advisory Board at Children’s National and we are so glad to have them joining us to share their experiences of strategies that were great, and some that they might change in the future. Thank you to the Walter and Jean Boek Global Autoimmune Institute for their ongoing support to make this podcast possible.…
1 Iron, Calcium, and Vitamin D - Naturally Boosting Nutrition in Your Diet! 16:00
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16:00Today’s podcast is all about natural ways to boost important nutrients in our diet, specifically iron, calcium, vitamin D and magnesium. This is especially important for patients with celiac disease who may be nutrient deficient. To help us dive into the topic, we have Dietitan Kathleen Walters in the studio to talk about these specific nutrients and foods that contain lots of them. Thank you to the Walter and Jean Boek Global Autoimmune Institute for their ongoing support to make this podcast possible.…
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