Remarkable: Life with Rett Syndrome
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Kandungan disediakan oleh Tracey Hoyng. Semua kandungan podcast termasuk episod, grafik dan perihalan podcast dimuat naik dan disediakan terus oleh Tracey Hoyng atau rakan kongsi platform podcast mereka. Jika anda percaya seseorang menggunakan karya berhak cipta anda tanpa kebenaran anda, anda boleh mengikuti proses yang digariskan di sini https://ms.player.fm/legal.
A podcast about the families all over the world who love someone with Rett Syndrome. "One day you will tell your story of how you've overcome what you're going through now, and it will become part of someone else's survival guide" Rett Syndrome is a rare genetic disorder with no current cure. As a parent of a daughter with Rett Syndrome, I wanted to talk to other parents to hear their stories and also give the newly diagnosed a positive and encouraging place to find comfort. Check back towards October ,which is Rett Syndrome Awareness Month each year.
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13 episod