Podcast terbaik Sclerosis (2024)

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#080: B-Cell Depletion – Ocrelizumab (Ocrevus), Ofatumumab (Kesimpta, Bonspri), Rituximab (Mabthera, Rituxan), Ublituximab (Briumvi) for active RRMS and SPMS, and early PPMS 30:40

3d ago30:40

30:40

Learn more about b-cell depletion, including Ocrevus, Kesimpta, Bonspri, Mabthera, Rituxan, and Briumvi, used for active RRMS, SPMS, and PPMS. You can read the full article on my blog: https://ms-perspektive.com/080-b-cell-depletion B-cell depletion therapies such as ocrelizumab (Ocrevus), ofatumumab (Kesimpta, Bonspri), rituximab (Mabthera, Rituxa…

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Webinar Highlights: Your opportunity to speak to a Neurologist about Living Well with MS with Dr Aaron Boster | S6E19 48:10

11d ago48:10

48:10

Welcome to Living Well with MS, the podcast that empowers you to take control of your health and wellbeing. Today we’re sharing the highlights from our ‘Ask Aaron’ webinar, recorded in front of a global audience, with the incredible Dr Aaron Boster. Dr Boster is a board-certified neurologist who specialises in MS, and we’re delighted to have him an…

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Diagnosing Multiple Sclerosis 35:25

19d ago35:25

35:25

In this era of highly effective treatments, early intervention for multiple sclerosis can be life changing. However, the wide range of initial symptoms often leads to many people being undiagnosed or misdiagnosed, leaving them without the proper care for years. In this podcast episode, we'll discuss the early signs of MS and the key tests, such as …

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Special: ECTRIMS 2024 - Personalized MS treatments, genetic risk factors and the benefits of early, effective therapies for women and children 19:51

10d ago19:51

19:51

Personalized treatments, genetic risk factors, gender differences and the advantages of early, highly effective therapies. You can read the full article here: https://ms-perspektive.com/ectrims-2024-ww1 This year, ECTRIMS 2024 in Copenhagen, Denmark, will once again bring together leading experts in multiple sclerosis (MS) from around the world. Th…

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#079: How your gut microbiome could influence Multiple Sclerosis with Prof. Dr. Natalia Szejko 44:52

11d ago44:52

44:52

Dr. Natalia Szejko reveals latest research on gut microbiome for MS, MOGAD, and NMOSD, offering new hope for managing these conditions. You can read all the questions and answers in the corresponding blog article: https://ms-perspektive.com/079-natalia-szejko Welcome to today’s episode. Whether you have MS, MOGAD (myelin oligodendrocyte glycoprotei…

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#078: Cladribine (Mavenclad, Leustat, Litak) for highly active MS 24:37

18d ago24:37

24:37

Cladribine (Mavenclad, Leustat, Litak) is an induction therapy the supresses the immun system and is used for highly active MS. You can read the complete article at: https://ms-perspektive.com/078-cladribine Cladribine (Mavenclad, Leustat, Litak) is an immunotherapy from the field of immunosuppressants that is used to treat highly active multiple s…

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The latest research in exercise for MS with Dr Robert Motl | S6E18 38:21

25d ago38:21

38:21

Welcome to Living Well with MS, the podcast that empowers you to take control of your health and wellbeing. Today we’re thrilled to welcome Dr Robert Motl as our guest! Dr Motl is a professor of kinesiology, nutrition and rehabilitation sciences at the University of Illinois at Chicago. He’s a top researcher in the field of exercise and physical ac…

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#077: Tailoring MS Treatment. The Impact of Mood Disorders on Patient Care with Dr. Emine Rabia Koç 37:47

25d ago37:47

37:47

Explore Dr. Emine Rabia Koç's insights on blending emotional and physical health for a holistic approach to MS treatment. You can find the written version as blog article here: https://ms-perspektive.com/77-emine-rabia-koc Today I speak with Dr. Emine Rabia Koç about the important intersection between mood disorders and patient care in multiple scl…

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#076: Alemtuzumab (Lemtrada, Campath) for highly active relapsing MS 27:06

1M ago27:06

27:06

Alemtuzumab (Lemtrada, Campath) is a DMT to treat highly active MS and has long-lasting effects and potential severe side effects. You can read the full article on my blog: https://ms-perspektive.com/076-alemtuzumab This time the focus is on alemtuzumab (Lemtrada, Campath). It is one of the highly effective immunotherapies and, in a subgroup of pat…

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Webinar Highlights: Resilience following Overcoming MS with Dr Rachael Hunter | S6E17 20:03

1M ago20:03

20:03

Welcome to Living Well with MS, the podcast that empowers you to take control of your health and wellbeing. Today we’re sharing the highlights from our webinar on ‘Resilience following Overcoming MS’ with the fantastic Dr Rachael Hunter. Rachael is a clinical psychologist and senior lecturer in clinical and health psychology at Swansea University. …

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#075: Decoding the EDSS Score. How It's Measured and What It Means 7:41

1M ago7:41

7:41

The EDSS score helps neurologists to measure the progression of MS as it measures limitations in functional systems. You can find the full article at: https://ms-perspektive.com/75-edss The Expanded Disability Status Scale (EDSS) is a key tool used by neurologists to measure how Multiple Sclerosis (MS) affects your body. Understanding the EDSS can …

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MS & The Spinal Cord 39:50

1M ago39:50

39:50

The spinal cord serves as the main communication highway between the brain and body. Did you know that 80% of people with multiple sclerosis have spinal cord lesions on MRI? These lesions can disrupt specific neural pathways, leading to common MS symptoms like numbness, weakness, impaired coordination, balance issues, bladder problems, constipation…

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#074: S1P Modulators - Fingolimod (Gilenya), Ozanimod (Zeposia), Ponesimod (Ponvory), Siponimod (Mayzent) for active RRMS & SPMS 31:10

2M ago31:10

31:10

Learn more about the S1P Modulators, known by the brand names Gilenya, Zeposia, Ponvory, Mayzent and their usage against active RRMS & SPMS. You can find the complete text to read on my blog: https://ms-perspektive.com/074-s1p-modulators Today it’s all about the group of S1P modulators, which includes fingolimod (Gilenya), ozanimod (Zeposia), pones…

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Nutritional Therapy with Bristol Ambassador Jenna Cox | S6E16 44:07

2M ago44:07

44:07

Welcome to Living Well with MS, where we are pleased to welcome Jenna Cox as our guest! Jenna is a nutritional therapist who lives with MS and is an Ambassador for the Bristol, UK Circle. In this episode, she talks about dairy alternatives, calcium and bone density on a plant-based diet and probiotics for the gut microbiome. Topics and Timestamps: …

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#073: “Haciendo Lo Invisible, Visible”. Crys's Journey of Invisible Battles and Visible Triumphs as Latina with MS in the US 52:57

2M ago52:57

52:57

Crys was diagnosed with MS at the age of 11. She talks about her experiences as a first-generation Latina and her mission on social media. You can find all questions and answers on my blog: https://ms-perspektive.com/073-crys Today I’m talking to Crys about her life with multiple sclerosis as a first generation Latina. Crys was diagnosed at age ele…

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Webinar Highlights: Overcoming MS with ‘talkhealth’ and Dr Jonathan White | S6E15 45:22

2M ago45:22

45:22

In this episode, we’re sharing highlights from a ‘talkhealth’ webinar: ‘TH+ Expert Webinar with Dr Jonathan White: Overcoming MS’. In the webinar, Overcoming MS medical advisor, Dr Jonathan White speaks about the evidence and benefits of the Program, his personal MS journey and making healthy changes for life. ‘talkhealth’ is a patient-centric onli…

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#072: Natalizumab (Tysabri, Tyruko) for active relapsing remitting MS 22:13

2M ago22:13

22:13

Natalizumab (Tysabri, Tyruko) is approved as disease-modifying therapy (DMT) for active RRMS with a rapidly evolving severe MS. You can read the complete article on my blog: https://ms-perspektive.com/072-natalizumab Today we are talking about natalizumab, which is known under the trade names Tysabri and Tyruko. The immunotherapy is used for active…

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Following and supporting Overcoming MS as a couple | S6E14 27:39

2M ago27:39

27:39

Welcome to Living Well with MS, where we are pleased to welcome Jane and Ian Airey-Regardsoe as our guests! Jane is a member of the Southwest, UK Circle and her husband, Ian is cycling to France as a fundraising challenge, supported by Jane, to benefit Overcoming MS. They chat about adopting the Overcoming MS Program as a couple, their fundraising …

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#071: Insights into MS treatment in Colombia with neurologist Dr. Adriana Casallas Vanegas 41:39

2M ago41:39

41:39

Dr. Adriana Casallas V. provides insights into the treatment and care of MS patients in Colombia including improvements and challenges. You can find all questions and answers to read through on my blog: https://ms-perspektive.com/71-adriana-casallas MS has long been known as an orphan disease in Colombia, but the increasing number of newly diagnose…

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#070: Teriflunomide (Aubagio) for relapsing remitting MS 19:06

2M ago19:06

19:06

Teriflunomide (Aubagio) is approved as disease-modifying therapy for mild to moderate RRMS from 10 years of age. You can find the full article to read on my blog: https://ms-perspektive.com/70-teriflunomide This time it’s about teriflunomide, which is known under the trade name Aubagio. The immunotherapy is used for mild to moderate courses of rela…

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#069: Beyond Boundaries. Advocacy, Research, and Recognition in MS with Rachel Horne 1:00:18

3M ago1:00:18

1:00:18

MS patient and advocate Rachel Horne sponsors a prize for women in MS research and campaigns for more diversity in clinical trials. You can read all questions and answers on my blog: https://ms-perspektive.com/69-rachel-horne Rachel Horne was diagnosed with multiple sclerosis at the age of 43, when she felt fit and healthy. She established the Rach…

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#068: Interferon-beta (Avonex, Betaferon, Extavia, Plegridy, Rebif, …) for CIS, RRMS & SPMS 21:52

3M ago21:52

21:52

Interferon-beta (Avonex, Betaferon, Extavia, Plegrid,y Rebif) is used as a disease-modifying therapy for mild to moderate RRMS, CIS & SPMS. You can find the full article to read on my blog: https://ms-perspektive.com/068-interferons In today’s article, I present interferon-beta, which include several active substances and are known as Avonex, Betaf…

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Highly Sensitive People and MS with Psychotherapeutic Counsellor Rachel Burn | S6E13 32:17

3M ago32:17

32:17

Welcome to Living Well with MS, where we are pleased to welcome Rachel Burn as our guest! Rachel is a Psychotherapeutic Counsellor and follows the Overcoming MS Program. In this episode, Rachel talks to Geoff about who should work with a therapist, how to choose a therapist, how to unpack our emotions and how to know if you’re a highly sensitive pe…

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#067: MS Speech Therapy Insights. Enhancing Communication and Swallowing 16:19

3M ago16:19

16:19

Discover how speech therapists can address often overlooked MS-related swallowing and communication disorders for timely intervention. You can find the written version to read on my blog: https://ms-perspektive.com/67-speech-therapy Swallowing and speech disorders usually play a subordinate role in the perception of patients. However, problems with…

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Accessible Live Music with Bee Grzegorzek from Attitude is Everything | S6E12 48:43

3M ago48:43

48:43

Welcome to Living Well with MS, where we are pleased to welcome Bee Grzegorzek (she/they) as our guest! Bee is the Inclusive Communities Manager for UK-based charity, Attitude is Everything, which connects disabled people with music and live event industries to improve access together. They talk to Geoff about making a festival safe and enjoyable, …

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#066: Pioneering Paths. Empowering Young Minds in MS & NMO Research with Dr. Sara Samadzadeh 49:08

3M ago49:08

49:08

Dr. Sara Samadzadeh contributes to research in the field of NMOSD and MS by creating networks between young researchers worldwide. You can find all questions and answers as well as all links on the blog article: https://ms-perspektive.com/066-sara-samadzadeh Multiple sclerosis and NMOSD have made tremendous advances in treatment due to research con…

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#065: Glatiramer Acetate (Copaxone, Brabio) for relapsing remitting multiple sclerosis 18:31

4M ago18:31

18:31

Glatiramer Acetate, brand names Copaxone and Brabio, belongs to the oldest immunotherapies for relapsing remitting multiple sclerosis. You can find the written version of this episode on my blog: https://ms-perspektive.com/065-glatiramer-acetate This time I am presenting glatiramer acetate, which is known as Copaxone, Brabio or other tradenames and…

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#064: Navigating MS Treatment in Turkey with Neurologist and Associate Professor Meral Seferoglu 28:55

4M ago28:55

28:55

Dr. Meral Seferoglu gives an insight into the treatment of MS in Turkey and how she uses her expertise to support patients. You can read all questions and answers on my blog: https://ms-perspektive.com/64-meral-seferoglu This time I have Dr. Meral Seferoglu as an interview guest on the show and we talk about MS treatment in Turkey. It’s always inte…

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Lifestyle Medicine with Dr Fraser Quin | S6E11 46:01

4M ago46:01

46:01

Welcome to Living Well with MS, where we explore topics relating to living a full and healthy life with multiple sclerosis. In this episode, we are pleased to welcome Dr Fraser Quin as our guest! Dr Quin is the Executive Director of the British Society of Lifestyle Medicine (BSLM), a charity that promotes the role of lifestyle medicine in improving…

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#063: Finding Joy Again. Navigating MS-Related Sexual Dysfunction 17:11

4M ago17:11

17:11

Sexual dysfunction is common in multiple sclerosis. However, there are many ways to overcome them and enjoy intimacy again. You can find the written version of the episode on my blog: https://ms-perspektive.com/63-sexual-dysfunction Sex can be one of the best things in life and sexual dysfunction can therefore cause a lot of frustration. In this ar…

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#062: Dimethyl fumarate (Tecfidera) and Diroximel fumarate (Vumerity) for relapsing remitting multiple sclerosis 19:55

4M ago19:55

19:55

Tecfidera and Vumerity, the fumarates kick-off the informative series about immunotherapy for multiple sclerosis. You can find the full article to read on my blog: https://ms-perspektive.com/62-fumarates Tecfidera and Vumerity, the fumarates, kick off the series on the approved disease-modifying therapies for MS. I am trying to give a good overview…

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Webinar Highlights: Accessible Movement for the Overcoming MS Community with Véronique Gauthier-Simmons | S6E10 39:04

5M ago39:04

39:04

In this episode, we’re sharing highlights from our webinar ‘Accessible Movement for the Overcoming MS Community’ with Dr Véronique Gauthier-Simmons. Véronique is a qualified yoga therapist who follows the Overcoming MS Program and supports Overcoming MS as a facilitator. She discusses the benefits of exercise, how to make it more accessible and how…

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#061: How to recognize bladder disorders in MS with the help of a simple questionnaire 8:58

5M ago8:58

8:58

Bladder disorders in MS are common and remain untreated in half of those affected. Nine simple questions are designed to help treat this symptom earlier. You can find the full article to read on my blog: https://ms-perspektive.com/61-bladder-check Today I would like to introduce the „MS Bladder Check Tool“, which was developed by a team of neurolog…

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#060: Overcoming MS Sleep Challenges for Restful Nights and Brighter Days. 10:53

5M ago10:53

10:53

Sleep disorders in multiple sclerosis can have a negative impact on many symptoms, which is why they should definitely be treated. You can find the transcript of the interview on my blog: https://ms-perspektive.com/60-sleep-challenges This episode is about sleep disorders caused by multiple sclerosis and how they can be treated. Almost three quarte…

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Uncommon Multiple Sclerosis Symptoms 35:54

5M ago35:54

35:54

Awareness of the more uncommon multiple sclerosis symptoms can lead to an earlier diagnosis and appropriate treatment. For instance, experiencing electrical shock sensations when bending the neck forward, known as Lhermitte’s sign, may indicate an attack on the cervical spinal cord. Likewise, excruciating bolts of pain across either side of the fac…

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Sticking with the Overcoming MS diet with Kim Venter | S6E9 22:01

5M ago22:01

22:01

Welcome to Living Well with MS, where we are pleased to welcome Kim Venter as our guest! Kim is a trained teacher, professional psychological counsellor, and nutritional consultant. She is also currently training to become a facilitator for Overcoming MS. In this episode, she discusses how to switch to a plant-based diet, how to make your healthy h…

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#059: Scoring for Science: The Dunk MS Fundraiser with Blake Arnet 26:01

5M ago26:01

26:01

Blake Arnet talks about his motivation for the Dunk MS fundraiser event that takes place each spring in Los Angeles. You can read the full interview on my blog: https://ms-perspektive.com/59-blake-arnet Welcome to today’s episode where I talk with Blake Arnet, a former UCLA basketball player, about his fundraising event, Dunk MS. Blake’s mother was…

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#058: Immunotherapy for MS. A guide to efficacy and choice with Prof. Tjalf Ziemssen 58:37

5M ago58:37

58:37

Choosing the right immunotherapy for each individual patient is a complex process. Prof. Ziemssen explains what needs to be considered. You can read the full transcript of the interview here: https://ms-perspektive.com/58-immunotherapy Today’s interview on immunotherapy for MS marks the start of the series on disease-modifying therapies. It is also…

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Webinar Highlights: Your opportunity to ask a qualified nutritional therapist about the Overcoming MS diet with Sam Josephs | S6E8 48:32

5M ago48:32

48:32

In this episode, we are sharing highlights from our webinar, ‘Your opportunity to ask a qualified nutritional therapist about the Overcoming MS diet’ with Sam Josephs. Sam is a qualified nutritional therapist and Overcoming MS facilitator. In this episode, she discusses fasting patterns, tips for Overcoming MS-friendly meals on a budget and how to …

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