Sure, it’s good to be flexible in life, but all things have their limits! If you’ve ever lived with a connective tissue disorder, you know all too well how often joint conditions like Ehlers-Danlos Syndrome (EDS) can go unrecognized by doctors and result in life-altering symptoms from pain and fatigue to gastrointestinal issues and insomnia. Whether you’re living with a hypermobility condition, treating one, or know someone living with their own – the greatest secret weapon you can use to ma ...
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Professor Jim Al-Khalili talks to leading scientists about their life and work, finding out what inspires and motivates them and asking what their discoveries might do for us in the future
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Welcome to the THINK AORTA podcast! Created in collaboration, the University of East Anglia and Aortic Dissection Awareness brings you this unique podcast designed to be an educational resource, informative in nature but driven by powerful and emotive patient stories.
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The Cardiovascular CME podcast is a new educational offering from Mayo Clinic, featuring content geared towards physicians, physician assistants, and nurse practitioners who are interested in exploring a multitude of cardiology-related topics. Tune in and subscribe to explore today’s most pressing cardiology topics with your colleagues at Mayo Clinic and gain valuable insights that can be directly applied to your practice. No CME credit offered for podcast episodes at this time.
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The Spoonie Struggle is about the raw, honest look at living life with chronic illnesses and chronic pain conditions. Spoonies of all types are welcome to join us, but we will have a heavier focus on the lesser common, lesser understood, and difficult to diagnose conditions, such as Ehlers Danlos, Marfan’s, Ankylosing spondylitis, Sjogren’s syndrome, lupus, multiple sclerosis, sickle cell anemia, and endometriosis. In this show, we will discuss our own experiences of each aspect of life with ...
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The most engaging conversation between health professionals happens in chance meetings in the hallways. During these moments so much is learned .*One Thing* brings together thought leaders in conversation and we share it with health enthusiasts , practitioners, and learners. Our conversations primarily focus on one significant thing in the arenas of gut health, brain health, immune system, metabolism, performance, and aging . This for clinicians and patients alike who are insightful and moti ...
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Revitalize your spirit and connect with the vibrant congenital heart defect (CHD) community through 'Heart to Heart with Anna,' the pioneering podcast that has been inspiring and informing listeners since 11-12-13. Join us as we dive deep into the personal journeys, triumphs, and challenges of Survivors, their loved ones, esteemed medical professionals, and other remarkable individuals within the CHD community. With unwavering dedication, our heartfelt conversations bring to light the storie ...
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Think Aorta Ep2 Part 1 Lindsey & Gareth's Stories Marfan Syndrome and Acute Aortic Dissection
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In Episode 2, Part 1 of the Think Aorta Podcast, we hear from two aortic patients with very different experiences. Gareth shares his story of surviving an acute aortic dissection, while Lindsey opens up about living with Marfan Syndrome and managing the ongoing risk.Oleh Simon Rose, School of Health Sciences, UEA
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hEDS vs HSD: Controversies in Diagnosis with Alan Hakim, MD
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Dr. Alan Hakim, a world-renowned rheumatologist and expert in Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD). Dr. Hakim reveals for the first time something about his own health. Listen in to find out what Dr. Hakim really thin…
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From Diagnosis to Advocacy: The Brave Little Hearts South Africa Story
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Send us a text What does it take to recognize the early signs of congenital heart defects (CHD) in a newborn? In this emotionally charged episode of "Heart to Heart with Anna," we welcome Raadhiyah Matthews, who recounts her harrowing journey with her daughter Thaakirah. From the initial dismissals by medical professionals to the profound struggles…
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Think Aorta Ep2 Part 2 The New You, Dissection Prevention, and Impacting Healthcare
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In Episode 2 Part 2 of the Think Aorta Podcast, Gareth and Lindsey discuss life post-surgeries and becoming a new you. They also talk about dissection prevention and how their respective organisations are impacting healthcare. The THINK AORTA campaign (www.thinkaorta.net) Aortic Dissection Awareness UK & Ireland Patient Charity (aorticdissectionawa…
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Cardioneural Ablation - A Promising Treatment Strategy for Refractory Vasovagal Syncope
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Cardioneural Ablation - A Promising Treatment Strategy for Refractory Vasovagal Syncope Guest: Guru G. Kowlgi, M.B.B.S. Host: Anthony H. Kashou, M.D. The learners will get an overview of how to diagnose and manage vasovagal syncope. In addition, they will gain an understanding of cardioneural ablation, which is a promising new catheter ablation tre…
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Peter Stott on climate change deniers and Italian inspiration
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In the summer of 2003, Europe experienced its most intense heatwave on record - one that saw more than 70,000 people lose their lives. Experiencing the effects whilst on holiday in Tuscany, climate scientist Peter Stott was struck by the idea that just maybe, he could use a modelling system developed by his team at the UK’s Met Office Hadley Centre…
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How EDS and HSD Impact Fascia and Pain with Tina Wang, MD
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Dr. Tina Wang, a leading expert in physical medicine, rehabilitation, and fascia research. Dr. Wang delves into the complexities of fascia, particularly its role in Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD). She explains ho…
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Unexpected Diagnoses: DiGeorge (22q11.2 deletion) Syndrome in the Lawrence Family
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Send us a text What would you do if you suddenly discovered that multiple members of your family were living with an intricate genetic condition? Join us for a heartfelt conversation with Regina Lawrence as she opens up about her family's journey with DiGeorge syndrome (a.k.a. 22q11.2 deletion syndrome). From the moment they learned about Aubrey's …
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Episode 106. Dr. Orli Peter Trauma response and PTSD in the Middle East
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In this episode of the One Thing podcast, Dr. Peterdiscusses the profound impact of her father's experiences as a Holocaust survivor on her life and career as a trauma psychologist. The conversation delves into the effects of generational trauma, the physiological and psychological responses to significant traumatic events, and the steps taken to a…
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Pre-Pregnancy Risk Assessment for CV Patients
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Pre-Pregnancy Risk Assessment for CV Patients Guest: Katie A. Young, M.D. Hosts: Malcolm R. Bell, M.D. In this podcast we will review the importance of specialized care in Cardiovascular Obstetrics and the role of the Pregnancy Heart Team in pregnancy risk assessment and pre-conception counseling. Topics Discussed: With maternal mortality rates bei…
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Ijeoma Uchegbu on using nanoparticles to transform medicines
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Imagine a nanoparticle, less that a thousandth of the width of a human hair, that is so precise that it can carry a medicine to just where it’s needed in the body, improving the drug’s impact and reducing side effects. Ijeoma Uchegbu, Professor of Pharmaceutical Nanoscience at University College London, has spent her career with this goal in mind. …
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Each week, join Dr. Linda Bluestein (AKA The Hypermobility MD) on her quest to demystify the wide world of symptomatic joint hypermobility. Get ready to better understand your own bendy body in our newest season – available now! Learn more about your ad choices. Visit megaphone.fm/adchoicesOleh Dr. Linda Bluestein, MD
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Overcoming Pain in EDS: Building Stronger Bodies with Whealth Founders Katie & Andrew Dettelbach
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, chats with Katie and Andrew Dettelbach, founders of Whealth, a program dedicated to helping people with hypermobility and chronic pain. Both Katie and Andrew have hypermobile Ehlers-Danlos Syndrome (hEDS) and have turned their personal struggles into a platform …
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Discovering a Myocardial Bridge at 65: Jeff's Journey to Heart Health Advocacy
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Send us a text Have you ever ignored a small discomfort only to realize it was something far more serious? Join us on "Heart to Heart with Anna" for an eye-opening conversation with Jeff, the creator and host of a non-profit podcast network, who discovered a congenital heart defect called a myocardial bridge at the age of 65. Jeff recounts his terr…
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Cardio-oncology: What is the Big Picture, What Drugs to Use, and What Tests to Follow
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Cardio-oncology: What is the Big Picture, What Drugs to Use, and What Tests to Follow Guest: Chadi Ayoub, M.B.B.S., Ph.D. Hosts: Sharonne N. Hayes, M.D. In this podcast, we will describe more frequent cardiotoxic effects associated with cancer therapies. Identify imaging modalities that can be used to detect and evaluate cardiotoxicity and common a…
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Darren Croft on killer whale matriarchs and the menopause
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Darren Croft studies one of the ocean’s most charismatic and spectacular animals – the killer whale. Orca are probably best known for their predatory behaviour: ganging up to catch hapless seals or attack other whales. But for the last fifteen years, Darren Croft’s focus has been on a gentler aspect of killer whale existence: their family and repro…
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Grief, Healing, and Mental Health Strategies for Chronic Illness with Natasha Trujillo, PhD
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In this insightful episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with Dr. Natasha Trujillo, a licensed sports psychologist specializing in grief, loss, and chronic illness. Dr. Trujillo and Dr. Bluestien both work with the Colorado Ballet. Dr. Trujillo discusses the complex emotional landscape of grieving when faced with chronic p…
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Episode 105 : The Beauty and Burden of Autism with Dr. Sandra Paulsen
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In episode 105 of the One Thing Podcast, Dr. Adam Rindeinterviews Dr. Sandra Paulsen, a renowned psychologist and author, about her professional journey and expertise in psychotherapy, focusing on her work with autism and Eye Movement Desensitization and Reprocessing (EMDR). Dr. Paulsen discusses her own experiences with autism, her approach to tre…
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Clinical Quantification of Myocardial Blood Flow Using PET
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Clinical Quantification of Myocardial Blood Flow Using PET Guest: Panithaya Chareonthaitawee, M.D. Hosts: Malcolm R. Bell, M.D. In this podcast, we will describe the clinical applications of PET MBF quantitation and discuss the strengths and limitations of PET MBF quantification. Topics Discussed: Why has PET myocardial perfusion imaging seen such …
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Bill Gates on vaccines, conspiracy theories and the pleasures of pickleball
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Bill Gates is one of the world's best-known billionaires - but after years at the corporate coalface building a software empire and a vast fortune, his priority now is giving that wealth away. And his ethos for doing it has been shaped by science. Famed for co-founding Microsoft, in recent decades Bill’s attention has turned to philanthropy via The…
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Group Rehabilitation for POTS with Emily Rich, OT
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down with Emily Rich, an occupational therapist specializing in POTS (Postural orthostatic tachycardia syndrome), Ehlers-Danlos syndromes, and other chronic conditions. Emily, who is also a patient with hypermobile EDS and POTS, shares her insights on how o…
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From Heart Block to Myotonic Dystrophy: A Survivor's Tale
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Send us a text What if your heart's rhythm was out of sync from birth, yet you persevered to defy medical odds? Join us as Gwenyth Murphy, a resilient second-generation congenital heart defect survivor, shares her compelling journey of managing complete heart block and other heart conditions. From coping with an abnormally low heart rate as a child…
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3D Visualization of the Heart in Immersive Technology Like Mixed Reality
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3D Visualization of the Heart in Immersive Technology Like Mixed Reality Guest: Dr. Klaudia Proniewska Host: Anthony H. Kashou, M.D. The most commonly applied way of teaching students the foundations of human anatomy and physiology involves textbooks and lectures. This method of transmitting knowledge causes difficulties for students, especially in…
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Understanding the Brain's Role in Chronic Pain with Kaitlin Touza, PhD
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, engages in an enlightening conversation with Dr. Kaitlin Touza, a renowned pain psychologist. Dr. Touza delves into the complexities of chronic pain, explaining how the nervous system, brain processes, and psychological factors contribute to pain experiences. Sh…
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Navigating Life with HLHS and Marfan Syndrome: Rachael's Powerful Story
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Send us a text Discover the remarkable resilience of Rachael Gott, our extraordinary guest born with hypoplastic left heart syndrome (HLHS). Despite her condition remaining uncorrected, Rachel has navigated a complex medical journey, including ten cardiac ablations and two device implants, all while avoiding open-heart surgeries. Rachael also faces…
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Episode 104 Marfan Syndrome with Dr. Amanda Lynn Hoffman
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In today’s episode, we have the honor of hosting a truly remarkable guest, Dr. Amanda Lynn Hoffman. As the first Naturopathic physician with Marfan syndrome to specialize in this field, Dr. Amanda Lynn offers invaluable insights for both individuals living with Marfan's Syndrome and their caregivers. Her groundbreaking work in Naturopathic medicine…
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Marfan Surgery Guest: Alberto Pochettino, M.D. Hosts: Paul A. Friedman, M.D. Marfan syndrome is a genetic abnormality where the fibrillin protein is abnormal. That affects all collagen structures within a given individual. Phenotypic features involve ocular abnormalities such as lens dislocation and a higher risk of retinal detachment, as well as d…
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Kip Thorne on black holes, Nobel Prizes and taking physics to Hollywood
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The final episode in this series of The Life Scientific is a journey through space and time, via black holes and wormholes, taking in Nobel-prize-winning research and Hollywood blockbusters! Kip Thorne is an Emeritus Professor of Theoretical Physics at Caltech, the California Institute of Technology, and someone who’s had a huge impact on our under…
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Connective Tissue Disorders and Lipedema with Karen Herbst, MD
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, hosts an enlightening discussion with Dr. Karen Herbst, a leading expert on lipedema and other adipose connective tissue diseases. Dr. Herbst shares her extensive knowledge on the complexities of lipedema, Dercum's disease, and their connection to connective tis…
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Chapter 10: Life Lessons from Congenital Heart Defects: Stories of Hope and Resilience
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Send us a text What happens when resilience meets a congenital heart defect? Join us as we uncover the extraordinary journeys of women who have turned their medical challenges into stories of hope and triumph. Begin with Emily Falcon's deeply moving "A Letter to my Younger Self," where she offers wisdom and reflections that will resonate with anyon…
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Hypertensive Disorders of Pregnancy and CV Risk
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Hypertensive Disorders of Pregnancy and CV Risk Guest: Thais D. Coutinho, M.D. Hosts: Paul A. Friedman, M.D. Hypertensive disorders of pregnancy are common and are associated with a significant increase in the risk of future cardiovascular diseases. Despite the well-established statistics, this increase in risk is not well recognized by patients or…
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Vicky Tolfrey on parasport research and childhood dreams of the Olympics
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It's summer - no really - and although the weather might have been mixed, the sporting line-up has been undeniably scorching - from the back-and-forth of Wimbledon, to the nail-biting Euros, to the current pageantry of the Summer Olympics. Next month the 2024 Paralympic Games get underway in Paris, involving the world’s very best para athletes; and…
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Linking Mast Cell Activation, Autoimmunity, and EDS with Kara Wada, MD
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In this episode, Dr. Linda Bluestein, the Hypermobility MD, delves into the intricate connections between the immune system and hypermobility disorders with Dr. Kara Wada. A quadruple board-certified physician and Sjogren's patient, Dr. Wada shares her expertise on mast cell activation syndrome, autoimmunity, and the role of inflammation. Discover …
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Episode 103. Conscious Eldering with Ron Pevny
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Episode 103: Conscious Eldering with Ron Pevny These days, getting older seems to be more like a war rather than a rite of passage. "Take this pill or this potion to reverse aging and stay young," they say. But is that really how we should view aging? We question this and more in this episode, where I welcome Ron Pevny, the director of the Center f…
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Chapter 9 of "The Heart of a Heart Warrior" Featuring Heart Warrior Authors
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Send us a text How do heart warriors find incredible strength amidst life's most challenging moments? In this episode of "Heart to Heart with Anna," we bring you deeply touching and empowering stories from individuals who have triumphed over congenital heart defects (CHD). Join us as Megan Tones sets the stage with an introduction to Chapter 9, fol…
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Genomics in Inflammatory Cardiomyopathies
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Genomics in Inflammatory Cardiomyopathies Guest: Naveen L. Pereira, M.D. Hosts: Kyle W. Klarich, M.D Patients with heart failure and ventricular arrhythmias can have inflammatory heart disease such as myocarditis or sarcoidosis. The diagnosis is typically made by imaging studies including cardiac MRI and PET scans. However, it is critical to perfor…
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Dawn Bonfield on inclusive engineering, sustainable solutions and why she once tried to leave the sector for good
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The engineering industry, like many other STEM sectors, has a problem with diversity: one that Dawn Bonfield believes we can and must fix, if we're to get a handle on much more pressing planetary problems... Dawn is a materials engineer by background, who held roles at Citroën in France and British Aerospace in the UK. But, after having her third c…
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Examining The Future of EDS Diagnosis and Care with EDS Society CEO Lara Bloom
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In this episode, Dr. Linda Bluestein, the Hypermobility MD, hosts a captivating conversation with Lara Bloom, President and CEO of the Ehlers-Danlos Society. Lara shares her journey in advocating for rare diseases, the progress made in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), and the upcoming updates in diagnostic c…
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"The Heart of a Heart Warrior" Chapter 8 Featuring Megan Tones and Julie Kerr
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Send us a text Ever wondered how a heartfelt community can transform lives through stories and shared experiences? Join me on this special episode of "Heart to Heart with Anna" as I express my gratitude for the overwhelming birthday wishes from the congenital heart defect community. You'll be introduced to the latest literary gem from Baby Hearts P…
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Understanding ECG Waveforms: Normal vs. Abnormal
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Understanding ECG Waveforms: Normal vs. Abnormal Guest: Dr. Peter van Dam Host: Anthony H. Kashou, M.D. The ECG interpretation is majorly driven by event detection, i.e. QRS onset and end, QT time, P wave etc. From these we can determine the normal heart rhythm, and some performance measures, like heart rate etc. The ECG waveforms, however, are muc…
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