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Kandungan disediakan oleh Stephen and Lori Saux and Lori Saux. Semua kandungan podcast termasuk episod, grafik dan perihalan podcast dimuat naik dan disediakan terus oleh Stephen and Lori Saux and Lori Saux atau rakan kongsi platform podcast mereka. Jika anda percaya seseorang menggunakan karya berhak cipta anda tanpa kebenaran anda, anda boleh mengikuti proses yang digariskan di sini https://ms.player.fm/legal.
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Let the new games begin! Starting Thursday, December 26th, join hosts Phil Yu (aka “Angry Asian Man”) and Kiera Please as they dive into each episode of Squid Game Season 2. Joined by a lineup of special guests, they’ll unpack the deadly new challenges, explore the layered characters, and debate the moral dilemmas that will leave you questioning everything. Squid Game: The Official Podcast returns December 26th.
If We Knew Then - Down Syndrome Podcast
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Kandungan disediakan oleh Stephen and Lori Saux and Lori Saux. Semua kandungan podcast termasuk episod, grafik dan perihalan podcast dimuat naik dan disediakan terus oleh Stephen and Lori Saux and Lori Saux atau rakan kongsi platform podcast mereka. Jika anda percaya seseorang menggunakan karya berhak cipta anda tanpa kebenaran anda, anda boleh mengikuti proses yang digariskan di sini https://ms.player.fm/legal.
We are parents of two children and one of them just happens to have Down syndrome. When Liam was born we didn’t know very much about Down syndrome and most of the information we did have didn’t seem very hopeful and positive. Well this podcast aims to share stories, break down stereotypes and help change the narrative by redefining Down syndrome.
…
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177 episod
Tandakan semua sebagai (belum) dimainkan
Manage series 2706513
Kandungan disediakan oleh Stephen and Lori Saux and Lori Saux. Semua kandungan podcast termasuk episod, grafik dan perihalan podcast dimuat naik dan disediakan terus oleh Stephen and Lori Saux and Lori Saux atau rakan kongsi platform podcast mereka. Jika anda percaya seseorang menggunakan karya berhak cipta anda tanpa kebenaran anda, anda boleh mengikuti proses yang digariskan di sini https://ms.player.fm/legal.
We are parents of two children and one of them just happens to have Down syndrome. When Liam was born we didn’t know very much about Down syndrome and most of the information we did have didn’t seem very hopeful and positive. Well this podcast aims to share stories, break down stereotypes and help change the narrative by redefining Down syndrome.
…
continue reading
177 episod
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If We Knew Then - Down Syndrome Podcast
1 176. Revisiting 10,000 Maniacs Founding Member Steven Gustafson 58:23
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58:23Steven Gustafson is a founding member and bassist of the band 10,000 Maniacs. His sister, Cathy, had Down syndrome and we got a chance to discuss with him the impact she had on his life and the lives around her. Today we revisit that interview to share this sibling love story. Episode Transcript: Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 175. Communicating Our Stories with Sid and Vaish Sarathy 1:16:28
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1:16:28This week we revisit our conversation with Sid and Vaish Sarathy. Sid, who has the duel diagnoses of autism and Down syndrome. Although he is non-Speaking, Sid is a poet with two published books. Dr. Vaish Sarathy is a functional nutrition practitioner and science educator. She is the founder of Functional Nutrition for Kids and Plum Pudding Chemistry, both practices designed to optimize the learning potential of kids with Down syndrome and/or autism using both functional medicine and non-linear education principles. In this episode, we discuss their journey with communication, breaking down barriers of misperception and limiting thoughts to support Sid in freeing his voice and the responsibility that freedom brings with it. Sid’s Poetry Books: https://push-press.blogspot.com Sid’s Instagram: https://www.instagram.com/downlikesid/ Vaish’s Website: https://functionalnutritionforkids.com Vaish’s Podcast Funtional Nutrition & Learning For Kids: https://podcasts.apple.com/us/podcast/functional-nutrition-and-learning-for-kids/id1478145610 Rapid Prompting Method (RPM): https://www.halo-soma.org Chris Martin’s Website: www.UnrestrictedInterest.com Connections Academy: https://www.connectionsacademy.com Episode Transcript: https://ifweknewthen701833686.wordpress.com/2024/06/15/175-communicating-our-stories-with-sid-and-vaish-sarathy/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 174. Advocating For Speech Therapy - Julie Picot 48:28
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48:28This week we once again sit down with Julie Picot but this time we are briefly joined by her daughter Elyse. We take a deep dive on the speech and reading journey in our community and discuss different ways to advocate for our children. Teach Your Child To Read in 100 Easy Lessons: https://a.co/d/3CEtpLY Episode Transcript: https://ifweknewthen701833686.wordpress.com/2024/06/09/174-advocating-for-speech-therapy-julie-picot/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 173. The Endless Possibilities of People with Down Syndrome: Revisiting Jake Pratt 1:03:30
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1:03:30This week we revisit our interview with Jake Pratt, who with support, advocacy and inclusion is living his dreams and changing the narrative for people with Down syndrome. Jake’s UPS Commercial: https://youtu.be/fw97dqK6uiM Episode Transcript: https://ifweknewthen701833686.wordpress.com/2024/05/27/173-the-endless-possibilities-of-people-with-down-syndrome/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 172. Happy Mothers Day: We Celebrate You 25:05
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25:05Today we celebrate all the powerful mothers who give so much to their children day in and day out. Remember how strong you are. The world runs on that power and we thank you. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2024/05/11/172-happy-mothers-day-we-celebrate-you/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 171. Alzheimer’s Disease In People with Down Syndrome - Dr. Elizabeth Head 45:22
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45:22This week we had the privilege to talk to Dr. Elizabeth Head, Professor and Vice Chair for research at the University of California, Irvine in the department of Pathology. Dr. Head has published more than 150 peer reviewed papers and has dedicated over 20 years to the study of aging and Alzheimer’s disease with a focus on people with Down syndrome. Head Lab: https://sites.mind.uci.edu/headlab/ ABC-DS study - https://www.nia.nih.gov/research/abc-ds DSConnect - https://dsconnect.nih.gov/ Center for Aging Research – Down syndrome - https://sites.mind.uci.edu/cfar-ds/ Episode Transcript: https://ifweknewthen701833686.wordpress.com/2024/04/27/171-alzheimers-disease-in-people-with-down-syndrome-dr-elizabeth-head/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 170. Celebrating The Life of Carl Erskine with Ted Green 1:02:25
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1:02:25The world lost pioneering Down syndrome advocate Carl Erskine on April 16, 2024, at the age of 97. Carl and his wife Betty, were involved deeply with the Special Olympics and charities which aimed at helping people with developmental disabilities such as his son Jimmy. Carl Erskine was a MLB All-Star, World Series Champion, ally of Jackie Robinson and the last surviving member of the “Boys of Summer” Brooklyn teams of the 1950’s. To honor Carl’s life, we revisit our episode with documentarian Ted Green discussing his film ’The Best We’ve Got: The Carl Erskine Story’. As Ted says in this conversation, Carl and Betty are the perfect embodiment of what is on Jackie Robinson’s tombstone. “A life is not important except for the impact it has on other lives“. Godspeed Carl. Website: https://www.carlerskinefilm.com Episode Transcript: https://ifweknewthen701833686.wordpress.com/2024/04/21/170-celebrating-the-life-of-carl-erskine-with-ted-green/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 169. The Annual DSDN Retreats with Ben Hughes 59:06
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59:06This week we are fortunate to have Ben Hughes back on the podcast to discuss the Down Syndrome Diagnosis Network’s (DSDN) annual “Rockin’ Retreats” that offer our community the connection and respite caregivers truly need. Retreat information page: https://www.dsdiagnosisnetwork.org/dsdn-retreats Dad's retreat registration page: https://form.jotform.com/DSDN/2024-rockin-dad-retreat Mom's retreat registration page: https://form.jotform.com/DSDN/2024-rockin-mom-retreat DSDN website: https://www.dsdiagnosisnetwork.org/ DSDN Facebook Page: https://www.facebook.com/DownSyndromeDiagnosisNetwork DSDN main fundraising page: https://dsdn.networkforgood.com/projects/201851-2024-dsdn-rockin-fundraising A link to Ben’s personal DSDN fundraising page: https://dsdn.networkforgood.com/projects/207713-ben-hughes-s-fundraiser Episode Transcript: https://ifweknewthen701833686.wordpress.com/2024/04/14/169-the-annual-dsdn-retreats-with-ben-hughes/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 168. Liam's 14th Birthday: Sharing Some Insight 1:05:45
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1:05:45Our son turned 14 last weekend and in this episode we reflect on the joys, challenges and growth we've experienced together on this journey with Liam. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2024/03/09/168-liams-14th-birthday-sharing-some-insight/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 167. A Discussion About Using The R-Word with Lynette Louise 59:26
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59:26This week we revisit our interview with Lynette Louise who is board certified in Neurofeedback. We were very interested in the science of Neurofeedback but early on in the conversation we moved to a serious discussion about the use of the r-word and the reasons why Lynette uses it. This episode may feel a bit intense for many of you and we understand why, but we highly recommend listening all the way through to the end. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2024/02/25/167-a-discussion-about-using-the-r-word-with-lynette-louise/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 166. Finding The Right Supports Without Shame - Julie Picot 1:03:42
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1:03:42This week we have the wonderful Julie Picot back on the show to discuss her experience transitioning her daughter, Elyse from TK to Kindergarten. We also touch upon how very often parents feel shame when guiding their school aged children out of diapers. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2024/02/17/166-finding-the-right-supports-without-shame-with-julie-picot/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 165. Picking The Right Pediatrician with Dr. Ilona Kleiner 58:13
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58:13Dr. Ilona Kleiner has been both our children's pediatrician since birth. Today we discuss with her the importance of always seeing the whole child and how her care for Liam really isn't any different than that of a typical child. Dr. Kleiner's Bio: https://www.pamgdocs.com/copy-of-about-our-doctors-1 Recommend books: What’s Going on Down There? by Karen Gravelle What’s Happening to My Body by Lyna Madras Guy Stuff by Cara Natterson It’s Perfectly Normal by Robin Harris Being You: The Body Image Book by Charlotte Markey Episode Transcript: https://ifweknewthen701833686.wordpress.com/2024/01/28/165-picking-the-right-pediatrician-with-dr-ilona-kleiner/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 164. Charlotte and Riley: Not Taking No For An Answer 48:42
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48:42In this episode, we discuss Charlotte Fien’s path to advocacy, breaking down the barriers of education, the love story between her and her husband Riley, and how her infectious can-do attitude has influenced him to break down barriers in his own life. It is the story of two humans creating the life they want to live and never taking no for an answer. Charlotte & Riley Forever FB Page: https://www.facebook.com/autismintune A World Without Down’s Syndrome (Documentary): https://www.amazon.com/gp/video/detail/B07MSHKFKQ/ref=atv_dp_share_cu_r Charlotte’s Speeches: 2017 United Nations: https://youtu.be/1Xqku6RwaAY?si=KYf7jnx-Uc56cgRP 2018 United Nations: https://youtu.be/FHglwa8vlYg?si=hwjusGDIsVSh5_ty Episode Transcript: https://ifweknewthen701833686.wordpress.com/2024/01/21/164-charlotte-and-riley-not-taking-no-for-an-answer/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 163. Revisiting Patience In The New Year with Maezen Miller 55:50
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55:50Happy Martin Luther King Day! We start this new year by revisiting with our friend, Zen Buddhist Priest, Maezen Miller. We discuss having patience and letting go in order for it to all unfold. Believing and having patience can enable our children to be who they are, go where they go and do what they do, to become exactly who they are. Karen Maezen Miller: https://karenmaezenmiller.com Maezen’s Book on Amazon: https://www.amazon.com/Karen-Maezen-Miller/e/B001JP2RQ0/ref=dp_byline_cont_pop_book_1 Steve & Michel Gleason Foundation: https://teamgleason.org Episode Transcript: https://ifweknewthen701833686.wordpress.com/2024/01/14/163-revisiting-patience-in-the-new-year-with-maezen-miller/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
Follow Stephen while he unexpectedly flies back to Louisiana due to his mother’s illness. He reflects on the importance of experiencing all of life’s moments and truly being present. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/10/22/162-living-in-the-moment/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 161. Down Syndrome Awareness Month 2023: Bringing Awareness to Our Community’s Potential 30:43
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30:43October is Down Syndrome Awareness Month and in this episode, Stephen and Lori discuss another angle in your next Awareness Campaign. Some of the most important people to make aware of our community's potential are educational professionals. We as parents can advocate but it just might be our children who change the minds of those in charge of their education. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/10/14/161-down-syndrome-awareness-month-2023-bringing-awareness-to-our-communitys-potential/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 160. The Inclusive Hub: A Gym For People of All Abilities with Liam Starkey 55:17
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55:17Joining us today is Liam Starkey from The Inclusive Hub. The Hub was started in 2016 helping small groups of Autistic children around Liverpool, England take part in non-contact boxing and fitness sessions. It has now expanded and continues to empower people of all ages and abilities through exercise. Website: www.theinclusivehub.co.uk Order a tee shirt: transalpino.co.uk Twitter: https://twitter.com/liamstarkey84 Instagram: https://www.instagram.com/the_inclusive_hub/?hl=en Facebook: https://www.facebook.com/RotundaInclusiveHub Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/10/08/160-the-inclusive-hub/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 159. DSALA and DSC2U: Supporting Our Spanish-Speaking Community 46:03
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46:03Today we are joined by Sandra Baker from the Down Syndrome Association of Los Angeles (DSALA) and Dr. Brian Skotko from the Down Syndrome Clinic To You (DSC2U) to discuss their collaboration in supporting Spanish-Speaking families that have a member with Down syndrome. DSC2U: www.DSC2U.org DSALA: www.DSALA.org DSALA Contact: (818) 786-0001 info@DSALA.org NOTES FROM DR. SKOTKO: We have written a summary paper for the lay audience to help them access and understand all of our research findings (available in English and Spanish ). We have created ready-to-go Facebook posts ( English and Spanish ) and Twitter posts ( English and Spanish ), summarizing our research findings. We also developed this Awareness Building event toolkit , so that Down syndrome groups can continue to host meaningful diversity dialogues in their community. We provide ready-to-go materials and easy action steps. Albert Pless and I gave Grand Rounds at UCSF Benioff Children's Hospital and our own MGH Genetics Division about our research findings. The recording for this presentation is available for viewing . Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/10/01/159-dsala-and-dsc2u/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 158. Best Buddies with Katelyn Quintero 1:05:38
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1:05:38This week we were joined by Katelyn Quintero from Best Buddies International, which is a nonprofit 501(c)(3) organization dedicated to establishing a global volunteer movement that creates opportunities for one-to-one friendships, integrated employment, leadership development, and inclusive living for individuals with intellectual and developmental disabilities. Website: www.bestbuddies.org Champion of the Year: www.bestbuddieschampion.org The Walk: www.bestbuddiesfriendshipwalk.org Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/09/24/158-best-buddies-with-katelyn-quintero/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 157. Ruby’s Rainbow with Liz Plachta 1:02:14
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1:02:14We had such fun talking to Liz Plachta, the founder of Ruby’s Rainbow! Ruby’s Rainbow grants scholarships to students with Down syndrome who are seeking post-secondary education, including enrichment or vocational classes, and helping them achieve their dreams of higher education while spreading awareness of their capabilities and general awesomeness. Ruby’s Rainbow: www.rubysrainbow.org WDSD Pledge: www321pledge.org Facebook Page: https://www.facebook.com/RubysRainbow/ Instagram: https://www.instagram.com/rubysrainbow/ Twitter: http://www.twitter.com/rubysrainboworg Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/09/16/157-rubys-rainbow/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 156. GiGi’s Playhouse with Nancy Gianni 1:15:43
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1:15:43Today, we are joined by Nancy Gianni to talk about her foundation, GiGi’s Playhouse, which provides FREE, life-changing therapeutic, educational, and career training programs for 30,000+ individuals of all ages, everyday. GiGi’s Playhouse empowers families by maximizing opportunities for daily achievement and lasting acceptance and in turn, showing the world what individuals with Down syndrome are truly capable of achieving as students, co-workers, volunteers, friends, and valued members of the community. GiGi’s Playhouse: https://gigisplayhouse.org Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/09/09/156-gigis-playhouse-with-nancy-gianni/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 155. Using Your IEP to Make the Most of Middle School 58:59
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58:59In this episode we give an update on our son Liam, a 13-year old in middle school, and discuss how far he has come, what supports have helped us navigate his transitions into middle school and how we are helping him find the independence every teen wants to cultivate. Citizen's Of The World Middle School: https://www.cwcsilverlake.org Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/09/02/155-using-your-iep-to-make-the-most-of-middle-school/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 154. Revisiting Our Interview with Megyn Price 1:11:45
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1:11:45This is our conversation with actress Megyn Price to discuss inclusion, the importance of encouraging others to express their uniqueness and how her Uncle, who had Down syndrome, affected her family in a positive way. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/08/27/154-revisiting-our-interview-with-megyn-price/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 153. Revisiting Jad Issa’s Story: A Man with Down Syndrome Raises a Family - An Interview with Sader Issa 45:22
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45:22This week we revisit the story of Jad Issa, a man with Down Syndrome who is a husband, father and respected citizen. At diagnosis, parents of children with Down syndrome are immediately told all the things their child won’t do. Jad’s life shows us that these preconceptions aren’t only untrue but the very belief in them often cause limitations. As with every child, all things are possible. We hope that this conversation with Jad’s son Sader, a dentist in Damascus, brings comfort to parents to believe in what may be thought of as impossible. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/08/20/jad-issa/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 152. Revisiting The Canadian Down Syndrome Society’s Project Understood - Training Speech Recognition Technology 57:53
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57:53This episode is the entire conversation we had with Matt MacNeil and Ed Casagrande from the Canadian Down Syndrome Society concerning their collaboration with Google AI to create a database that can help train Google’s speech recognition technology to better understand people with Down syndrome. Donate your voice at: https://projectunderstood.ca Learn more about the CDSS: https://cdss.ca Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/08/13/152-revisiting-the-canadian-down-syndromes-project-understood-training-speech-technology/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 151. The New York City Buddy Walk and Times Square Video with Abby Brandon-Livits and Misty Adams 54:44
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54:44This week we are joined by Abby Brandon-Livits and Misty Adams from the National Down Syndrome Society to talk about the 2023 NYC Buddy Walk and it’s wonderful Times Square Video presentation that redefines the image of the Down syndrome community. NYC Buddy Walk website: https://give.ndss.org/event/2023-new-york-city-buddy-walk-r/e478474 National Down Syndrome Society: www.NDSS.org FaceBook: https://www.facebook.com/NDSS1979 Instagram: https://www.instagram.com/ndssorg/ Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/08/06/151-nyc-buddy-walk/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 150. Down Syndrome Research, Ableism and The Right To Just Be with Dr. Eric Rubenstein 1:34:05
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1:34:05Today we're joined again by Dr. Eric Rubenstein, an Assistant Professor of Epidemiology at Boston University School of Public Health. Eric is a researcher, a volunteer for the Special Olympics and a lifelong advocate of individuals with Down syndrome. This conversation is a round table discussion of change and evolution, progress and insights that we feel so fortunate to be able to share with each of you today. Eric’s Website: https://sites.bu.edu/rubenstein Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/07/30/150-ableism/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 149. Down Syndrome and Alzheimer’s Research with Dr. Tom Mahan 1:27:03
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1:27:03Today we're joined by Dr. Tom Mahan, who specializes in Alzheimer’s research with a focus on individuals with Down syndrome. Tom is a father of three boys and his oldest son, Teddy, has down syndrome which is what sparked him into taking his already existing research of Alzheimer’s and guiding it to a focus on individuals with Down syndrome. ABC-DS: https://www.nia.nih.gov/research/abc-ds NIH INCLUDE Project: https://www.nih.gov/include-project DSDN Facebook Page: https://www.facebook.com/DownSyndromeDiagnosisNetwork DSDN Website: https://www.dsdiagnosisnetwork.org/ Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/07/23/149-alzheimers/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 148. RODS Heroes - Our Interview with Brady Murray 1:15:56
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1:15:56This week we visit with Brady Murray of RODS Heroes, an organization meant to inspire families to answer the call to adopt children born with Down syndrome and other special abilities. Brady and his wife Andrea have seven children and it was their adopted son Cooper who brought our attention to the Murray’s advocacy though his appearances throwing out the first pitch a Major League Baseball games. In this conversation we also talk about Brady’s Special Needs Life Planning venture, Special Abilities Network and discuss his eldest son, Nash and the experience of receiving Nash’s Down syndrome diagnosis in 2007. RODS Heroes: https://rods.org Facebook Page: https://www.facebook.com/rodsheroes Instagram: https://www.instagram.com/rodsheroes/ Special Abilities Network: https://specialabilitiesnetwork.com/ Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/07/16/148-rods-heros/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 147. T21 Coffee - Giving Back to the Down Syndrome Community - Johan Lindborg 56:09
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56:09In this episode, we speak with Johan Lindborg, founder of t21 Coffee. We had a beautiful conversation discussing his journey with his 12 year old son Cooper and how he has transformed from the doubts he had and the darkness he felt when receiving the Down syndrome diagnosis. It is an open and honest discussion that touches on fears to which any parent can relate. In the face of those fears, he created T21 Coffee, which both employs individuals with Down syndrome and donates a portion of every bag sold to Down syndrome research. T21 Coffee: https://www.t21coffee.com Facebook Page: https://www.facebook.com/t21coffee Instagram: https://www.instagram.com/t21coffee1/ Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/07/09/147-t21-coffee/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 146. Down Syndrome Diagnosis Network (DSDN) with Ben Hughes 49:42
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49:42Today we are joined by Ben Hughs to discuss the Down Syndrome Diagnosis Network (DSDN) and how it empowers new parents with online supports, information, and resources. We also talk about the in person “Rockin’ Retreats” that offer our community the connection and respite necessary, but not always utilized, on the journey for every parent and caregiver. DSDN Facebook Page: https://www.facebook.com/DownSyndromeDiagnosisNetwork DSDN Website: https://www.dsdiagnosisnetwork.org/ DSDN Retreats: https://www.dsdiagnosisnetwork.org/dsdn-retreats Ben’s Email: ben@dsdiagnosisnetwork.org Governor Pritzker’s Commencement Speech: https://youtu.be/NhuIU_kXJDE Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/07/01/146-dsdn/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 145. A Grassroots Movement to Change the Narrative: A Conversation with Ted Green 1:01:07
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1:01:07Ted Green is a documentarian whose latest film, ‘The Best We’ve Got: The Carl Erskine Story’, will be airing on PBS SoCal July 4th. Ted’s film is an in-depth look at Carl Erskine, a Dodgers pitcher whose son Jimmie was born with Down syndrome 63 years ago, a time in our country’s history when segregation plagued humanity. Carl and Betty, when faced with the inevitable institutionalization of their son, which was the option that was customarily given by the medical community to protect the integrity of their family unit, made the choice to take their child home and raise him. A decision for the time that took great courage, taking some of the first steps to change the narrative of Down syndrome. Stream The Film: https://watch.eventive.org/heartlandfilm Website: https://www.carlerskinefilm.com EPIC Website: http://soindiana.org/EPIC EPIC Promo (3:30): https://vimeo.com/710911325/b293dfbb38 Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/06/26/145-ted-green/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 144. Non-Speaking Is Not Non-Communicating - Vaish and Sid Sarathy 1:16:28
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1:16:28Today we are joined by Vaish and Sid Sarathy. Dr. Vaish Sarathy is a functional nutrition practitioner and science educator. She is the founder of Functional Nutrition for Kids and Plum Pudding Chemistry, both practices designed to optimize the learning potential of kids with Down syndrome and/or autism using both functional medicine and non-linear education principles. Sid, who has the diagnoses of autism, Down syndrome, and non-speaking, is, among other things, a poet with two published books of poetry. In this episode, we discuss their journey with communication, breaking down barriers of misperception and limiting thoughts to support Sid in freeing his voice and the responsibility that freedom brings with it. Full Interview Video (01:33:17): https://youtu.be/DkE4ZkYdSjM Sid’s Poetry Books: https://push-press.blogspot.com Sid’s Instagram: https://www.instagram.com/downlikesid/ Vaish’s Website: https://functionalnutritionforkids.com Vaish’s Podcast Funtional Nutrition & Learning For Kids: https://podcasts.apple.com/us/podcast/functional-nutrition-and-learning-for-kids/id1478145610 Rapid Prompting Method (RPM): https://www.halo-soma.org Chris Martin’s Website: www.UnrestrictedInterest.com Connections Academy: https://www.connectionsacademy.com Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/06/19/144/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 143. Letting Go: A Conversation with Karen Maezen Miller 1:07:05
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1:07:05In this episode we speak again to Zen Buddhist Priest, Karen Maezen Miller and discuss the art of letting go, letting the answers be in the moment, and finding surrender in acceptance of that moment. Karen Maezen Miller Website: https://karenmaezenmiller.com Maezen’s books on Amazon: https://www.amazon.com/Karen-Maezen-Miller/e/B001JP2RQ0/ref=dp_byline_cont_pop_book_1 Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/06/09/143-letting-go/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 142. Learning From Our Mistakes: Deconstructing an IEP with Julie Picot 1:18:50
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1:18:50In this episode, Julie Picot shares the experience of her latest series of IEP’s meant to usher her daughter Elyse into the Los Angeles Public School system. LAUSD Complaint Response Unit Website: https://achieve.lausd.net/Page/3581 Email: EquityCompliance@lausd.net Phone: (213) 241-7682 TTY: (213) 241-2511 Directions To File A Due Process (PDF): https://achieve.lausd.net/cms/lib/CA01000043/Centricity/domain/168/froms/REF%201410.9%20Attachment%20A%20Directions%20to%20File%20for%20Due%20Process.pdf Alternate Dispute Resolution (PDF): https://achieve.lausd.net/cms/lib/CA01000043/Centricity/Domain/1220/ADR_Brochure_English_Spanish_6.22.pdf LAUSD Uniform Complaint Procedures Form (PDF): https://achieve.lausd.net/cms/lib/CA01000043/Centricity/Domain/383/03%20BUL-5159.11%20UCP%20Complaint%20Form_English.pdf Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/06/04/142/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 141. Julie and Aaron Picot: The First 5 Years of Their Journey with Down Syndrome 1:02:12
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1:02:12In this episode we speak with Araon and Julie, parents of 5 year old Elyse, about the lessons learned, the changes seen and the realizations made from diagnosis till now. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/05/28/141-julie-and-aaron-picot/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 140. Keeping Up with Bertie - An Update with Melissa Kynoch 1:14:31
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1:14:31In this episode we reconnect with Melissa Kynoch as her son Bertie begins primary school in Birmingham, England. You may remember that Melissa and Bertie were featured on the popular BBC Documentary Series ‘Life and Birth’. Among many things, we discuss the impact inclusion has made in Bertie’s life and the family's journey. Wouldn’t Change A Thing - https://www.wouldntchangeathing.org Bookworms Day Care: https://www.facebook.com/profile.php?id=100086453783217 Up and Downs Support Group: https://www.facebook.com/upanddownswm BBC 'Life and Birth’: https://www.bbc.co.uk/iplayer/episode/m000j6v0/life-and-birth-series-1-episode-4 12 Step Fellowship: https://www.na.org Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/05/06/140-keeping-up-with-bertie/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 139. Looking Back and Seeing the Effects of a Non Inclusive Environment - Indira Cruz 1:13:25
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1:13:25In this week's episode we have a wonderful conversation with Indira Cruz discussing the impact a non-inclusive environment had on her brother, now 50. By looking back at our past we learn from the injustices and see the consequences they had on generations of people with disabilities. Some of those lessons can be hard. This is one of them. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/04/23/139-indira-cruz/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 138. ’Yes. No. Maybe.’ - Our Entry In The 2023 Easterseals Disability Film Challenge 29:22
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29:22This episode marks the beginning of the Easterseals Disability Film Challenge’s Awareness Campaign. It’s our 9th film and it’s taken nine years to realize the Awareness Campaign strives to tell our stories to as many people as possible and by doing that, changing the path and narrative of individuals with disabilities. Our film, 'Yes. No. Maybe.' is a teenage love story. We hope you will watch and it makes you smile. www.YesNoMaybeFilm.com EDFC Website: https://disabilityfilmchallenge.com Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/04/10/138-yes-no-maybe/2/…
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If We Knew Then - Down Syndrome Podcast
1 137. Citizens of the Wold Charter Schools: Christina Aries and Maureen Lamorena-Tatsui 1:00:56
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1:00:56In this episode we celebrate Citizens of the World Charter Schools whose approach to inclusion was a life changing discovery for our family. We sit down with Dr. Maureen and Mrs. Aries, Co-principals of CWC, and discuss the importance of inclusion, its impact and why we as parents, if it is what is best for our student, should insist on our child’s right to an inclusive classroom. CWC Website: www.CWCsilverlake.org CWC Instagram: https://www.instagram.com/citizensoftheworldla/ CWC Los Angeles FB: https://www.facebook.com/citizensoftheworldLA CWC Kansas City FB: https://www.facebook.com/cwckansascity Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/03/26/137-cwc/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 136. World Down Syndrome Day with Dr. Eric Rubenstein and his Co-Researcher Team 44:23
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44:23Happy World Down Syndrome Day 2023! In celebration of our community, we are sharing a discussion we had this month with Dr. Eric Rubenstein and his co-researcher team. Dr. Eric is an Assistant Professor in the Department of Epidemiology at Boston University and his research team is comprised of six adults with Down syndrome who engage the research process to create their own project. The team is curious about the mental health of people with Down syndrome and designed a research project to explore people’s experiences with mental health issues and how they find support. Take the survey: https://bostonu.qualtrics.com/jfe/form/SV_bxyp6tWSkJcoU86 The group is also hosting a webinar on Tuesday, March 21 from 12pm-1:30pm EST Register for the World Down syndrome Day webinar: https://bostonu.zoom.us/webinar/register/WN_BkU7e9D8TO6HPXSRU2gfpg Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/03/19/136-world-down-syndrome-day-with-dr-eric-rubenstein-and-his-co-researcher-team/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 135. Revisiting with Children’s Hospital Los Angeles Pediatrician Dr. Mona Patel Gera 1:18:38
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1:18:38Dr. Mona is an attending physician in the Department of General Pediatrics at Children’s Hospital Los Angeles and an Associate Professor in the Department of Pediatrics at the Keck School of Medicine of the University of Southern California. She sat down with us to challenge the many medical myths and stereotypes surrounding children with Down syndrome. Health Supervision Guidelines: https://www.healthychildren.org/English/health-issues/conditions/developmental-disabilities/Documents/Health_Care_Information_for_Families_of_Children_with_Down_Syndrome.pdf Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/03/12/135-revisiting-with-childrens-hospital-los-angeles-pediatrician-dr-mona-patel-gera/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 134. Your Dentistry Questions Answered - Dr. Jill Lasky 43:27
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43:27Dr. Jill Lasky discusses the importance of Pediatric Dentistry, how to introduce dental care and specifics pertaining to the Down Syndrome community. We also discuss methods and tools for parents who want to support their children in making good dental health habits. Lasky Pediatric Dental Group: https://www.laskypediatricdental.com Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/03/05/134-your-dentistry-questions-answered-dr-jill-lasky/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 133. Liam Turns 13: Let The Teenage Years Begin 43:22
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43:22This week Liam turns 13. We recorded this episode on Valentine's Day with is fitting because love is the driving force of this family. Becoming a teenager is a milestone we have been looking forward to and we are thankful for all the ups and downs that have gotten us here. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/02/18/133-liam-turns-13-let-the-teenage-years-begin/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 132. Black History Month: Revisiting Our Interview with Willie Dawkins 1:09:07
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1:09:07For Black History Month we revisit a phenomenal episode we had with Willie Dawkins. We honor his story and his parents who gave him the foundation of love and support he needed to find his way through an unjust world and the advocates who came before us who fought for equality and laid the groundwork for our fight for inclusion. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/02/10/132-black-history-month-revisiting-our-interview-with-willie-dawkins/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 131. The Things We Learn: The Evolution of An Advocate 46:28
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46:28We talk today about how we learn to do things differently, the way we learn from our past, and how the seemingly smallest memories can hold so much in them, like the little lessons along the way. We also explore the need to accept when it’s easy, and how that can be a challenge in itself. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/02/03/131-the-things-we-learn/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 130. Michael Sanford: An Advocate for Diverse Casting in Hollywood - Part 2 43:51
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43:51This is the second half of a two part interview with casting director Michael Sanford about the work being done to make media more inclusive and diverse. We first met Michael when he cast our son, Liam, in the Lena Dunham movie SHARP STICK. Michael had seen Liam in a film made for the Disability Film Challenge where people with disabilities have a space to tell their own stories in the hopes that more spaces like that will be made in Hollywood. Disability Film Challenge: https://disabilityfilmchallenge.com Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/01/29/michael-sanford-an-advocate-for-diverse-casting-in-hollywood-part-2/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 129. Michael Sanford: An Advocate for Diverse Casting in Hollywood - Part 1 46:49
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46:49This is a two part interview with Hollywood casting director Michael Sanford about the importance of inclusion in everyone's life and the responsibility the film and television industry has to uphold a fabric of diversity that is reflective of our global society. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/01/22/129-michael-sanford-an-advocate-for-diverse-casting-in-hollywood/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 128. The Next Generation of Advocacy 46:14
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46:14In this episode we discuss the hope we have for the future and the positive changes we see in the next generation of Down syndrome advocates. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/01/16/128-the-next-generation-of-advocacy/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 127. Revisiting A Loving Kindness Meditation with Paul Denniston 27:15
27:15
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27:15We’ve talked about self-care on this podcast and the importance of parents and caregivers to find the time to take care of themselves. We are so grateful that Paul Denniston has once again gifted us, and our listeners, with a guided meditation. This time Paul will guide us through a wonderful Loving Kindness Meditation to help us with the many struggles we can face when we so often put others before ourselves. Paul’s Website: https://griefyoga.com Episode 22 - Paul’s 30 Minute Yoga Nidra Meditation: https://ifweknewthen.podbean.com/e/22-a-meditation-gift-from-paul-denniston/ Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/01/07/127-revisiting-a-loving-kindness-meditation-with-paul-denniston/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 126. Happy New Year: Revisiting The Practice of The Beginner’s Mind with Maezen Miller 1:02:57
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1:02:57Happy New Year! We hope you are all having a wonderfully relaxing and safe holiday. Today in the spirit of the new year, we revisit an interview we had with Karen Maezen Miller about the practice of The Beginner’s Mind. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/12/31/126-happy-new-year-revisiting-the-practice-of-the-beginners-mind-with-maezen-miller/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
In this episode we talk about hope. Losing hope when challenges become overwhelming and finding it again on the other side. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/12/19/125-a-season-of-hope-down-syndrome-advocacy/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 124. Revisiting with Caroline Bencze-Fernandez Part 2: At Home Tools and Supports 31:20
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31:20Because we get so many questions from new parents, we wanted to revisit a couple of our very early episodes. In this Part 2 we re-air Caroline’s second appearance on the podcast where she dives a little deeper into the aspects of Early Intervention, what tools parents can use at home and how therapies for children with Down syndrome have changed over the years. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/11/27/124-revisiting-with-caroline-bencze-fernandez-part-2-at-home-tools-and-supports/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 123. Revisiting with Caroline Bencze-Fernandez Part 1: Early Intervention 26:20
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26:20Because we get so many questions from new parents, we wanted to revisit a couple of our very early episodes. In this Part 1 we re-air an extremely informative interview with Child Development Specialist, Caroline Bencze-Fernandez where she explains the importance of Early Intervention, how therapies have changed throughout her 30 year career and what parents should know. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/11/20/123-revisiting-with-caroline-bencze-fernandez-part-1-early-intervention/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 122. Happy Anniversary: Things We’ve Learned Over 18 Years 43:51
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43:51It’s our wedding anniversary and we take a minute to reflect on the past 18 years. Happy Anniversary! Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/11/07/122-our-anniversary-episode/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 121. Down Syndrome Awareness Month 2022 40:43
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40:43In this episode we discuss our journey with awareness. We explore how we are learning to cultivate what awareness means in our lives, the way in which awareness has changed over the years and its impact on our advocacy. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/10/28/121-down-syndrome-awareness-month-2022/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 120. The Secret Episode - Living For The Moments 22:53
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22:53Stephen recorded a solo episode this week, unbeknownst to the family, to express some things that have been on his mind and as a nice surprise to Lori and the kids whenever they come across it. It’s kind of a time capsule episode focused on this present moment and how there is nothing as important as right now. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/10/21/120-the-secret-episode-living-for-the-moments/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 119. Walking The Walk, Breaking Down Stereotypes - with Dr. Eric Rubenstein and Kaethe Sigelko 51:11
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51:11This week we talked to Dr. Eric Rubenstein and one of his co-researchers, Kaethe Sigelko to discuss self advocacy and the importance of including people with Down syndrome in shaping our community. For everything they ever told you your child would not or could not do - sometimes it takes an example of what is possible to remember who we are and that every child’s life is one of possibility. Eric’s Website: https://sites.bu.edu/rubenstein Contact Kaethe: k.sigelko1415@gmail.com Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/10/14/119-walking-the-walk-breaking-down-stereotypes-with-dr-eric-rubenstein-and-kaethe-sigelko/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 118. The Best We’ve Got: The Carl Erskine Story with Ted Green 1:07:03
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1:07:03Documentarian, Ted Green visits with us to discuss his most recent film “The Best We’ve Got: The Carl Erskine Story”. As a teammate and close friend of Jackie Robinson and then as the father of a person with Down syndrome, Carl played a pioneering role in two human-rights movements. Our guest, Ted Green switched to filmmaking in 2010 after 20 years as a newspaper journalist, and since then he has produced and directed eight documentaries. Other subjects include Holocaust survivor Eva Kor, and Indianapolis’ Crispus Attucks High School. Website: https://www.carlerskinefilm.com EPIC Website: http://soindiana.org/EPIC EPIC Promo (3:30): https://vimeo.com/710911325/b293dfbb38 “The Fan Connection”: https://www.fanconnectionmovie.com Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/10/06/118-the-carl-erskine-story-with-ted-green/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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If We Knew Then - Down Syndrome Podcast
1 117. Having The Patience To Be Where You Are - A Conversation with Karen Maezen Miller 55:50
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55:50In this week's episode we are joined by Zen Buddhist Priest, Maezen Miller. We discuss having patience and letting go in order for it to all unfold. Believing and having patience can enable our children to be who they are, go where they go and do what they do, to become exactly who they are. Karen Maezen Miller: https://karenmaezenmiller.com Maezen’s Book on Amazon: https://www.amazon.com/Karen-Maezen-Miller/e/B001JP2RQ0/ref=dp_byline_cont_pop_book_1 Steve & Michel Gleason Foundation: https://teamgleason.org Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/09/30/117-patience-with-karen-maezen-miller/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.…
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