Podcast by Rare Candy
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RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy.
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Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.
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Wie denkt dat klimaatproblemen, feminisme of superrijken typisch dingen van nu zijn, heeft het mis. De Romeinen hadden er ook mee te maken. In de podcast Rare Jongens vertelt historicus Olivier Hekster (Radboud Universiteit) hoe de Romeinen omgingen met dingen waar we ook nu mee te maken hebben. Samen met Merijn Doggen (hoofdredacteur Universiteit van Nederland) bekijkt hij wekelijks onze tijd door de bril van de Romeinen. Met dank aan de Letteren Faculteit van de Radboud Universiteit
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Ever wonder what makes people take the leap and follow their dreams? That's what RareErth Podcast is all about. I sit down with folks who've turned their passions into careers, asking them the tough questions we all face. How'd they find the courage to start? What keeps them going? Whether it's artists, business owners, or creative thinkers, I'm chatting with people who've taken risks to do what they love. If you're looking for a little inspiration or just enjoy a good story, tune in. Learn ...
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Parenting tools and life hacks for raising a child with a rare diagnosis. Let’s get to the meat of it!
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This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface fo ...
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In rarity we unite, connect and find our way to purpose.
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Hosted by Dan Cleary, RFR is a comedy podcast that aims to be just that; in rare form. Sex, race, religion, conspiracy, controversy... nothing is off limits! The faint of heart need not apply. Follow us on Instagram & Twitter: @RareFormRadio - subscribe wherever you get your podcasts - Give us a rating & review if you'd be so kind. Support this podcast: https://podcasters.spotify.com/pod/show/rareformradio/support
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Casey + Cassandra are a pair of best friends with the same rare disease. Their goal is simple: sharing their lives to showcase the beauty and normalcy in disability, while having fun together. They’ll also touch on accessibility, friendships, style, and everything in between as they live their best, rare, lives! For show notes, go to rarewithflair.com
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Fighting sarcoidosis as well as other rare diseases.
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Welcome to A Podcast of Rare Antiquities! Host’s Harry and Geoff discuss and analyze film and television shows. This podcast mainly delves into more obscure and forgotten films but latest releases are sometimes covered. We hope this is the rare antiquity you are looking for.
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Welcome to the Dream Rare Podcast! An audio experience aiming to lift you up, make you laugh & help you get healthier all while bringing you some of the best news analysis on Earth.
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We’re bringing you a slice of our lives through humor, tears, drama, games & pop culture, where trying to stay on topic is only half the fun! Join us!
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Young women have been growing up with an indoctrination of what womanhood is and what it should be. They've been taught everything that is in direct opposition to the Word of God. Young women who want to be different from the world are rare but they are real. Audrey Broggi will often be joined by her daughter and her daughters-in-law who desire to be discerning in a day when everything seems to go against God's design.
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Hello, welcome to A Rare Breed Podcast! My name is Avee (Aw-vee) your host. This show will bring you entertainment and enlightenment. My opinions on topics from politics, social ideology, culture, and more! I try to keep it light, sweet and to the point. I want to give you my juicy take on what is going on in the world and keep the movement of conservative's going strong. The left will not win!
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The Rare Possessions Podcast digs into the Scripture Central Library to find valuable works that focus on the Book of Mormon and other Restoration scripture.
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Wait How Do You Spell That? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We‘re definitely not doctors, and we can‘t give you medical advice. We‘re just here to chat and learn about the diseases that even doctors can‘t seem to spell. Check out the latest in rare disease news at PatientWorthy.com.
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Welcome to the Rare Cuts Media Society! A Book Club Style show where we dive into Movies, TV, Books, Music, and more. Each month one of us will choose a new piece of media to dive into and discuss. Make sure you watch, listen, and read along with us each month so you will be ready for our discussion. Warning: There will be Spoilers!
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Lær mere om vin og vinens forunderlige verden mens du er på farten - dét er præmissen for denne, ikke helt traditionelle, podcast udgivet af RareWine Group. Vi har kombineret podcastformatet med det bedste fra lydbøger. Således kan du her finde vores yndlingsartikler og portrætter om de største producenter og de mest populære vinområder serveret i en række korte podcast-episoder, som du kan lytte til mens du er på farten. Bliv klogere på selveste Domaine de la Romanée-Conti, lær om hvorfor C ...
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Formerly Nutrition Equity, rare connection is an extension of the podcast to include all 10,000 rare conditions and not just those covered by the Medical Nutrition Equity Act. Some of the conditions may be the same, but I am trying to turn this into a learning experience for those in the medical feild, policy leaders, and those who are just interested in hearing about rare conditions and patient stories. Rare conditions are called zebras hence the zebra striped ribbon. More common conditions ...
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Escape The World Thru MusiQ.
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Rare Insights: Uncovering The Future Of Rare Disease Treatments
Know Rare (Taren Grom, Liz Kay, Kaitlyn Taylor, Nina Wachsman, and DNA Today’s Kira Dineen)
On “Rare Insights” we bridge the gap between those living with rare diseases and the biopharmaceutical industry. Know Rare amplifies the voices of individuals with rare conditions, providing invaluable perspectives to accelerate therapeutic solutions. Join us as we dive deep into the complexities of rare diseases, exploring real-world insights from passionate industry leaders. Together, we navigate the unknowns and unlock the potential for groundbreaking treatments. Because in this journey, ...
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Imagine the excitement of becoming a new parent and then within hours finding out your child has a serious developmental disorder. That is exactly where Sanath Kumar Ramesh found himself in the summer of 2018. One year later, on his son’s first birthday, they found out that their son, Raghav, had an extremely rare mutation of the GPX4 gene. At the time, doctors told them that Raghav may be the only one on the planet with this genetic variant who had lived beyond one month of life. The progno ...
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I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because ea ...
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Conversations started by The Whitworth Group
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Patient Empowerment Program: A Rare Disease Podcast
n-Lorem Foundation (Dr. Stan Crooke, Amy Williford, Kim Butler, Andrew Serrano, Jon Magnuson, and Kira Dineen)
Join the nano-rare disease community! Interviews features leading physicians, scientists, biotech experts, and patient advocates. Lessons teach core concepts about drugs. Our host Dr. Crooke has led the creation of antisense technology and his foundation, n-Lorem, is using this powerful technology to discover, develop, and provide personalized experimental antisense oligonucleotide medicines to nano-rare patients for free, for life. n-Lorem is a non-profit organization established to apply t ...
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Facts are facts if you would like to share your story or be apart of the podcast email me at 1allmostrare@gmail.com
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Funny in Spanish Cover art photo provided by Nahil Naseer on Unsplash: https://unsplash.com/@nahilnaseer
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Podcast by rarebirdlit
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Welcome to the VeryRarePodcast
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New Simplicity Channel. Robert Bonet's Music No Published
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Every beginning carries within it the seed of its own destruction.
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A series of eclectic mixes from my vinyl record collection- check for regular updates and downloadable classics.
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Funny and........ N O T H I N G
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Welcome to the new Rare Kidney Disease Show part of the RKD Scientific Network sponsored by Travere Therapeutics. The Rare Kidney Disease Show is your primary source for cutting-edge insights, expert perspectives, and pivotal updates in nephrology. Led by our panel of experts, explore the advances in glomerular nephropathies through compelling conversations, challenging case studies, and discussions tackling hot topics. Join us as we strive to provide you with the ultimate resource to suppor ...
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Karena menulis dan merekamnya dengan suara adalah cara mengabadikan sebuah kenangan yang telah usai. Support this podcast: https://podcasters.spotify.com/pod/show/heirare/support
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A blockchain informational podcast. We produce an annual blockchain convention called Rare Evo.
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Two girls dropping gems in all areas of life! From your social to your personal life hopefully what we talk about can help you!
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Matt Condon and Jonathan Mann explore what it means to own things on the blockchain and beyond.
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"Medium Rare is a brand-new talk show podcast from the minds behind G33k P0p. Join us every fortnight for discussions of topics that we think are interesting, regardless of if it's what you want to hear"
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This is a podcast tutorial
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Stories and Testimonies about 22Q11.2 and all rare and not so rare disorders and causes
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The home of Schwarzenegger Watch Together, the podcast that chronologically critiques the career of actor, bodybuilder, politician and American hero Arnold Schwarzenegger, and other projects
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Forty Fivan is a San Francisco based DJ & record collector, highly regarded for his creative mixes, and deep collection of rare Brazilian vinyl.
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A platform that discuss current Topics as well as promote Upcoming Underground Artist And the #1 Goal is to Appreciate the “ REAL” because it’s Rare
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Entertainment jokes life real life
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Julian Assange FIRST TIME SPEAKING Since Release! Mentions Trump, Pompeo & Barr...
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Julian Assange has spoken for the first time since being a free man & Michael Tracey interviews a top member of the Trump transition team to see if Jared Kushner will be involved in his new team if he wins. Hope you enjoy! DreamRareLinks.comOleh An0maly
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All About Koolen de-Vries Syndrome, feat. Patient Advocate Ashley Point
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In this episode of the podcast we speak to Ashley Point, a patient advocate advocate whose son Davis was diagnosed with Koolen de-Vries Syndrome (KdVS) in 2016. She also serves as the president for both the Koolen de-Vries Syndrome Foundation and My Kool Brother, two non-profits that help to support families living with KdVS through advocacy, resea…
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#315 - Welcome new listeners! Heartthrob gets embarrassed. Snubbing Hollywood royalty. New Oreo flavor. Super Wet Mega Wet. The Substance review. Date night coming. James Webb found a UFO? Diddy is in trouble. --- Support this podcast: https://podcasters.spotify.com/pod/show/rareformradio/support
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169: Crunchy Medical Parenthood w/ Suzi Boubion and Julianna Morasse
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Imagine with us: You have a shelf full of tinctures, a book of natural remedies, and plan to use holistic medicine to care for your family as much as possible... and then you have a medically complex child who requires intense medical intervention, specialist appointments, and a whole host of pharmaceuticals. This is where Suzi Boubion and Julianna…
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Roxy Music pt. 1 w/ Vincent Nappi
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Part 2 Available for Premium Subscribers https://rarecandy.substack.com/p/roxy-music-pt-2-w-vincent-nappiArtist Vincent Nappi (https://www.instagram.com/vincent_nappi/?hl=en) joins Glen and Psi for a deep dive on Roxy Music. Part one focuses on their self titled album up until Flesh and Blood. Rare Candy on Apple, Spotify, IG, X, and more https://b…
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Sneak Peek of the 2024 Nano-rare Patient Colloquium
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Take a glimpse behind the curtain as we offer you a sneak peek of the 2024 Nano-rare Patient Colloquium. We’re thrilled to welcome back longtime biotech journalist and current Features Editor of The Transmitter, Brady Huggett, to the podcast. In an interview with n-Lorem founder and CEO Stan Crooke, they preview the upcoming Colloquium, diving into…
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103. live from columbus: recapping our amazing weekend
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hi hello hey, we’re finally in the same room!!! This episode is extra-special because Case visited Cass in Columbus! If you enjoyed our live episode back in 2022 when Cass visited Memphis, you’re in for a treat. Cass planned a jam-packed weekend to show off her city, and we’ve got a lot to recap! From candles, bookstores, bakeries, and even a trip …
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This week on the podcast, you will hear the fourth and final message in the study, Chosen in Love. My daughter, GraceAnna, gave a powerful talk on what it means to be chosen for womanhood. I am sure it will encourage you. And as always, you will find lots of essays I've written over the years at my website www.audreybroggi.com…
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005: Demystifying the Invisalign Process: Tammy Ruh on the Process & Benefits for Children with Special Needs
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Episode 005: Demystifying the Invisalign Process: Tammy Ruh on the Process & Benefits for Children with Special Needs | Rare Meet for Moms Podcast In this episode, Meghan speaks with Tammy Ruh, a dental hygienist and special needs mom, about the challenges and strategies involved in managing her son's dental care, given his diagnosis of GAND (gatad…
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18. Voedsel. Hadden de Romeinen ook obesitas?
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Het meeste verrassende in deze aflevering is waarschijnlijk dat de arme Romeinen gevarieerder aten dan je zou denken. Maar eten is zoveel meer dan een eerste levensbehoefte vertelt historicus Olivier Hekster (Radboud Universiteit). Het is ook een machtsmiddel. Je kan er mensen mee paaien en je kan er verkiezingen mee winnen.Helpdesk Rome: Heb je ee…
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Lori Myers, shares her experience living with VSD and Tetralogy of Fallot, which caused her to be born as a "blue baby" and have various health issues throughout her life. After multiple surgeries and diagnoses, she was eventually told she had pulmonary arterial hypertension (PAH). Despite the prognosis, Lori is now in her tenth year since the diag…
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#4 Conquering the Science of Muscle Disease with Edgewise Therapeutics
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In this episode of "Rare Insights," host Taren Grom speaks with Dr. Joanne Donovah, Chief Medical Officer at Edgewise Therapeutics, about groundbreaking advancements for severe, rare muscle disorders. Dr. Donovan shares why Edgewise’s approach to targeting the basic unit of muscle contraction and being able to preserve and protect muscle function c…
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Episode 46/port strike importance
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Send us a text This episode is only about the port strike and how impactful it will be for us all. Intro music Please consider supporting the show! Support the show Stay safe out there everyone!Oleh Avee
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To read this chapter, go here: https://scripturecentral.org/archive/books/book-chapter/thieves-androbbersIn ancient Near Eastern law, there was a big difference between a thief and a robber: thieves were locals dealt with by the courts, while robbers were dangerous outsiders handled militarily, often executed on the spot. This distinction is key in…
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138: An Interview With Mahesh Desai, PhD, of the Luxembourg Institute of Health
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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Mahesh Desai, PhD, of the Luxembourg Institute of Health’s Department of Infection and Immunity. Dr. Desai discusses how healthy gut bacteria may reduce the side effects of chemotherapy in cancer patients.Oleh Rare Care Podcast
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Wes Michael: Dedicated to Amplifying the Rare Patient Voice
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We often hear the stories of patients and caregivers. Rare Patient Voice is well known for connecting family's stories with the researchers who need to hear them. The founder, Wes Michael, sat down with us to share the results of a caregiver survey they conducted in late 2023. The findings were interesting and affirmed much of what parents raising …
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Episode 122 | Lindsay Lawrence was a surfer until sarcoidosis pulled her under
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Lindsay Lawrence was the picture of health. Active, mother of two children, healthy eater. All the things. But something just wasn't right. It got worse and worse until her doctor told her that her lungs were being damaged by sarcoidosis. In the time since diagnosis, she has been searching for the medications that work, while sarcoidosis creeps int…
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Chronic Intestinal Pseudo Obstruction With Briana From Ohio
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Send us a text Briana's son was diagnosed with Maple Syrup Urine Disease and Chronic Intestinak Psuedo Obstruction, He will be undergoing a dual transplant of both the small intestine and the Liver. Liver transplants have been known to cure Maple Syrup Urine Disease, Both conditions are covered by the Medical Nutrition Equity Act which would mandat…
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Having Cancer Saved My Life, Andres Varela's Story.
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"I didn't expect the cancer to fix everything." Many of us sit on cruise control through life, and it can be hard for people to find true perspective on both the fragility and the beauty of being alive until either something earth shattering happens or we are faced with our own mortality. Andres Varela spent most of his life from teen years struggl…
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Get ready to lose some teeth as Geoff and Harry throw haymakers at each other while they review the 2011 sports comedy, Goon. #Goon #moviereviews #hockey #obcuremovies #APodcastofRareAntiquitiesOleh A Podcast of Rare Antiquities
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Rare Cuts Road Trip Playlist Missouri
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Rare Cuts Media Society is on the road and every road trip needs some great tunes.IN this special edition one off episode, the Panel each pick a different bit of music to listen to on in the car….and all of the artists had to be Missourians As the Rare Cuts Media Society travels the great state of Missouri, they picked jams that span geography from…
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