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The ECTRIMS Podcast

The European Committee for Treatment and Research in Multiple Sclerosis

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The world is better when its people are connected. The ECTRIMS Podcast aims to be a sounding board for MS experts & advocates to discuss innovative work in MS research, treatment and care with the greater MS research community, while offering a collaborative platform for MS and healthcare experts to promote & nurture the advancement of research.
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Ectoplasm and Evil

Swasti Shukla Buick & Tenn Buick

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Tenn and Swasti Buick (and the occasional special guest) talk about all things supernatural, paranormal, and true crime, bringing lesser heard stories to the forefront.
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The rise of multiple sclerosis (MS) registries worldwide has transformed MS research, providing access to vast clinical data spanning years. This development also ignites critical conversations about how best to use real-world data to answer questions over the treatment of people with MS and the potential shift towards personalised medicine. In thi…
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Fatigue is a common symptom of multiple sclerosis, significantly impacting the quality of life of people living with the disease. In this episode, Dr. Anne-Laure Dubessy of Hôpital Pitié-Salpêtrière in Paris and Professor Iris-Katharina Penner of the University Hospital of Bern in Switzerland join host Brett Drummond of MSTranslate to discuss the c…
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The recent ECTRIMS 2024 in Copenhagen showcased the work of young scientific investigators, including this year's ECTRIMS Fellowship recipients Oscar Ayala from Colombia and Zuhal Abasiyanik from Turkey. Every year, ECTRIMS awards fellowships across various categories to promote knowledge and expertise in the field of multiple sclerosis (MS). Oscar…
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Nearly three million people worldwide are living with multiple sclerosis (MS), affecting individuals from diverse geographical, ethnic, racial, and socio-economic backgrounds. This diversity raises important questions about how these factors may influence the experiences and outcomes of those with MS, as well as whether research studies and clinica…
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While paediatric onset multiple sclerosis is relatively rare, it presents unique challenges. Extensive research efforts are taking place around the world to better understand the disease mechanism of paediatric MS and the similarities and differences that exist with adult onset MS to help determine the best treatment options for children and adoles…
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If you talk to someone living with MS about their journey, one of the first things they will tell you is that they knew something was wrong long before they received their diagnosis. While this anecdotal evidence has been commonly discussed, it was only relatively recently that the research world has started to investigate this concept. Through thi…
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Significant progress has been made in multiple sclerosis (MS) treatments over the past 20 years. What does the next 20 years hold for MS therapies? What novel targets are being investigated? What clinical trials are in the pipeline and when can we expect new medications in the market? Host Brett Drummond of MS Translate explores these questions and…
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In this episode, we discuss the disaster that was Hurricane Helene and some of the big takeaways we can all learn from. We are joined by Nick, better known as The Sicilian on Instagram, who is a native to Western North Carolina and someone who found a sense of community as he tried to do what he could to help his neighbors. Nick "The Sicilian" Inst…
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Nurses play a specialised and unique role in the journey of people living with multiple sclerosis (MS). At ECTRIMS 2024, MS nurses showcased their experiences and insights into how to effectively support patients. In this episode, host Brett Drummond of MSTranslate talks with veteran MS nurses K-J Lazarus of Austin Health in Australia and Fiona d'Y…
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The Patient Community Day of ECTRIMS 2024 brought together people living with multiple sclerosis (MS), medical professionals, researchers, and advocates in two interactive sessions. They explored the forefront of MS research and treatment, focusing on groundbreaking topics like remyelination and myelin repair. They disussed promising new therapies …
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The Patient Community Day of ECTRIMS 2024 brought together people living with multiple sclerosis (MS), medical professionals, researchers, and advocates in two interactive sessions. They explored the forefront of MS research and treatment, focusing on groundbreaking topics like remyelination and myelin repair. They disussed promising new therapies …
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Misdiagnosing multiple sclerosis (MS) is not uncommon. Neuromyelitis optica spectrum disorder (NMOSD) and myelin oligodendrocyte glycoprotein antibody disorder (MOGAD) can have clinical manifestations similar to MS. In this two-part episode, host Brett Drummond of MSTranslate speaks with Prof. Sara Mariotto of the University of Verona in Italy and …
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Misdiagnosing multiple sclerosis (MS) is not uncommon. Neuromyelitis optica spectrum disorder (NMOSD) and myelin oligodendrocyte glycoprotein antibody disorder (MOGAD) can have clinical manifestations similar to MS. In this two-part episode, host Brett Drummond of MSTranslate speaks with Prof. Sara Mariotto of the University of Verona in Italy and …
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The following episode has been produced by the European Academy of Neurology (EAN) in collaboration with the European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS), and has been published on both the EAN and ECTRIMS Podcast channels to ensure our joint communities have access to it. In this episode of eanCast: Weekly Neurolog…
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Multiple sclerosis (MS) is a complex and multifaceted neurological disorder. While MS has a genetic component, it is not a classic genetic disease. For this reason, a large amount of research has been done to identify environmental factors that may also be involved. In this episode, host Brett Drummond of MSTranslate talks with Emmanuelle Waubant, …
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The next major step forward in the management of MS involves finding treatments that can repair damaged myelin. If successful, it would offer the potential to start to reverse some of the symptoms experienced by people living with MS. Bruno Stankoff, a neurologist of the Pitié-Salpêtrière Hospital in Paris and vice president of ECTRIMS, and Gianvit…
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In this episode, we dive into the topic of Auto Rifles and other small unit friendly support weapons as conversation continues to circulate about building the American minutemen. Our Guest for this episode is John, better known as Night Fighter on Instagram, who previously served in the Marine Corps Infantry and is an avid supporter for the auto ri…
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People living with MS want to be able to improve their quality of life and take control of a disease that is often filled with uncertainty. In this space, no topic has generated more interest or discussion than lifestyle modifications such as diet and exercise. What is the current evidence on how effective they can be at helping manage the disease?…
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In this episode, we bring on the owner of Teardown Systems, Jeremiah August, to discuss their mission, how they develop products and their push to encourage community building. All of their products are American made in based in the state of Ohio! https://www.teardownsystems.com/ Find more content, products, classes and more at the link below: http…
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While multiple sclerosis (MS) has been traditionally described as a disease of young adults, the significant improvements in treatments over the past few decades has meant that researchers and clinicians are now increasingly handling questions related to the impact of ageing. In this episode, host Brett Drummond of MSTranslate talks with Anneke Van…
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Artificial intelligence (AI) can be a powerful tool to help enhance our understanding of MS disease processes, improve our diagnostic accuracy, better predict disease course, and identify optimal treatments. How is AI being used in MS research currently and what may it be able to do in the future? Host Alan Thompson, Editor in Chief of MS Journal, …
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In this episode, we discuss what the Human Trafficking Awareness Range Day is as we get ready for a new years of sign ups and instructor announcements! (September 14-15, 2024) The proceeds from the HTA Range Day go directly to the Deliver Fund, which is a non-profit organization helping combat human trafficking! HTA Range Day Instagram: https://www…
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In a landscape where funding is increasingly difficult to obtain, the importance of conducting research that has the greatest impact has never been more important. In the case of women with MS, a large-scale scoping review,* conducted on behalf of the International Advisory Committee on Clinical Trials in MS, sheds light on the research gaps relate…
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In this episode, we discuss the ever changing threat of Active Shooters, what you can do to prepare and help when faced with one, and what to expect from Law Enforcement on scene. We are joined by the Owner of Grenzer Concept's, who comes from a mixed Military & Law Enforcement background with real world experience responding to an Active Shooter i…
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Hey Boolievers and Non-Boolievers This episode starts with an interesting story by yours truly and my experience with the shadowman. During our research, I found one website that briefly explained the reasoning behind this shawdowman phenomenon, while Mike tells us a story he came across about someone elses experience with a shadow figure. If anyon…
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The ECTRIMS Congress offers a valuable opportunity for young researchers to gain experience and exposure. Joonas Lehikoinen from Helsinki University Hospital and the University of Helsinki Neurocenter, along with Ahmed Abdelhak from the University of California, San Francisco, received poster abstract prizes at MSMilan2023. Host Brett Drummond from…
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With the growing push towards taking a more personalised approach to the treatment and management of multiple sclerosis, it is important to understand the unique issues – both socially and clinically – that may arise among people of different ethnicities. In this episode, Natalie Bursari of The Nerve of My Multiple Sclerosis in the UK and Mitzi Joi…
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Discussions are ongoing to change the way MS patients are diagnosed and treated. In this episode, Xavier Montalban, Chair of the International Advisory Committee on Clinical Trials in Multiple Sclerosis, which is leading the discussions, explains the evolution of the McDonald criteria and why these proposed revisions are important for clinicians an…
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In this episode, we are joined by the Owner of Red Right Hand to discuss their line of AR uppers, the Second Amendment and the role of the Automatic Rifleman amongst the Citizenry. Red Right Hand: https://redrighthandllc.com/ Find more content, products, classes and more at the link below: https://lnk.bio/Everyday_Citizens_Tactical…
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Recent global epidemiological data show that approximately 70% of people diagnosed with multiple sclerosis are women. While this may tell us something about the mechanisms behind disease susceptibility, it also raises a number of unique challenges throughout the MS journey. In this episode, Ruth Dobson, Professor of Clinical Neurology at Queen Mary…
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Welcome back boolievers and non-boolievers! Greetings to those joining this podcast for the first time! In this episode, Artie and Mike Reaper delve into the enigmatic tale of the legendary bluesman, Robert Johnson. Did he truly sell his soul at the crossroads for his musical craft? Who is Papa Legba? Was Roberts music an attempt to forewarn us abo…
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The MSMilan Patient Community Day was designed for people living with multiple sclerosis and related neurological diseases and their caregivers to stay updated and involved in the advancements being made on their journey towards managing their conditions. In this episode, Tim Coetzee, Chief Advocacy, Services & Science Officer and Bonnie Higgins, D…
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The Season Finale of Ectoplasmic Residue is FINALLY HERE! Join Mike, Artie, and special guest Araceli as she talks about her experience in this abandoned hospital. Shout out to Brock Hinger, Joshua Malak, and Mike for sticking through this test season of our podcast. We couldnt have done it with any of you! Starting the new year right with Season O…
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Mike and Artie do a recap of Season 0, giving their opinions on the episodes, improvements and goals necessary for season 1, and their overall honest opinion of the entire season as a practice run. Feel free to Contact Us Audio Editing by Artie ( Unfortunately) Artwork and Illustrations by Joshua Malak Special Thanks to literally everyone who has b…
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Mike and Artie talk about a local legend that spread among the surrounding cities of Turnbull Canyon. Hey listeners! Is there a local legend that you remember everyone talking about back in the day? Send us an email and tell us what about it! We'd love to hear them! Contact Us Audio Edited by Brock Hinger Artwork and Illustrations by Joshua Malak R…
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Get your milk and cookies ready because on todays Christmas special, Mike and Artie travel back in time to find the origins of the anti-Santa Clause, Krampus. Merry Christmas everybody! We hope you enjoy this short and sweet episode! As always, we appreciate any feedback you can give us. Contact Us Audio Editing done by Brock Hinger Artwork by Josh…
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Mike shares an unsettling story that he stumbled upon while browsing through the paranormal subreddit years ago. References: Original Reddit Post More Information On Greg NewKrik: Greg Newkirks Website Planet Weirds Youtube: Greg and Danas Youtube channel The Unbinding Documentary : Here is the movie if anyone is interested Contact Us: Please feel …
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Why do some people with multiple sclerosis (MS) continue to run marathons while others are in wheelchairs years after diagnosis? Genetics partly explains why. Scientists have identified the first genetic marker for MS severity, which could pave the way for new treatments to prevent disease progression. Sergio Baranzini of University of California S…
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In this episode, we talk about gathering Intelligence to aid your preparedness plan, as well as the evolution of gun owners & gun culture. I am joined by Joey, the owner of GrayFighter & Trinity Training Complex, who has spent his career in law enforcement with a focus in anti-terrorism. https://www.grayfightergear.com/ https://trinitytrainingcompl…
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