Artwork

Kandungan disediakan oleh eupatientsforum. Semua kandungan podcast termasuk episod, grafik dan perihalan podcast dimuat naik dan disediakan terus oleh eupatientsforum atau rakan kongsi platform podcast mereka. Jika anda percaya seseorang menggunakan karya berhak cipta anda tanpa kebenaran anda, anda boleh mengikuti proses yang digariskan di sini https://ms.player.fm/legal.
Player FM - Aplikasi Podcast
Pergi ke luar talian dengan aplikasi Player FM !

Project spotlight | EATRIS-Plus

17:00
 
Kongsi
 

Manage episode 374388473 series 2981180
Kandungan disediakan oleh eupatientsforum. Semua kandungan podcast termasuk episod, grafik dan perihalan podcast dimuat naik dan disediakan terus oleh eupatientsforum atau rakan kongsi platform podcast mereka. Jika anda percaya seseorang menggunakan karya berhak cipta anda tanpa kebenaran anda, anda boleh mengikuti proses yang digariskan di sini https://ms.player.fm/legal.

This episode will bring into the spotlight one of our longstanding projects: EATRIS-Plus. EATRIS-Plus aims to build further capabilities and deliver innovative scientific tools to support the long-term sustainability strategy of EATRIS as one of Europe’s key research infrastructures for Personalised Medicine.

As the project will come to an end in December 2023, we invited Oriana de Sousa to sit with us and reflect how meaningful patient engagement took shape throughout all the activities of the project.

Oriana is a Patient Advisory Committee representative for the EATRIS+ Project. A survivor of rare cancer, she's now a Patient Advocate and EUPATI-certified Patient Expert. Oriana recently completed training in Scientific Innovation and Translational Research with EURORDIS. Her advocacy focuses on childhood, AYAs, and Small Cells Ovarian Cancer. She's part of the Rare Tumors of the Ovary network and Genomics in Oncology Patient Expert Network, and an Ambassador for the EU-CAYAS-NET Project. Oriana collaborates with diverse stakeholders, amplifying patient voices and championing a patient-centered approach.

  continue reading

61 episod

Artwork
iconKongsi
 
Manage episode 374388473 series 2981180
Kandungan disediakan oleh eupatientsforum. Semua kandungan podcast termasuk episod, grafik dan perihalan podcast dimuat naik dan disediakan terus oleh eupatientsforum atau rakan kongsi platform podcast mereka. Jika anda percaya seseorang menggunakan karya berhak cipta anda tanpa kebenaran anda, anda boleh mengikuti proses yang digariskan di sini https://ms.player.fm/legal.

This episode will bring into the spotlight one of our longstanding projects: EATRIS-Plus. EATRIS-Plus aims to build further capabilities and deliver innovative scientific tools to support the long-term sustainability strategy of EATRIS as one of Europe’s key research infrastructures for Personalised Medicine.

As the project will come to an end in December 2023, we invited Oriana de Sousa to sit with us and reflect how meaningful patient engagement took shape throughout all the activities of the project.

Oriana is a Patient Advisory Committee representative for the EATRIS+ Project. A survivor of rare cancer, she's now a Patient Advocate and EUPATI-certified Patient Expert. Oriana recently completed training in Scientific Innovation and Translational Research with EURORDIS. Her advocacy focuses on childhood, AYAs, and Small Cells Ovarian Cancer. She's part of the Rare Tumors of the Ovary network and Genomics in Oncology Patient Expert Network, and an Ambassador for the EU-CAYAS-NET Project. Oriana collaborates with diverse stakeholders, amplifying patient voices and championing a patient-centered approach.

  continue reading

61 episod

Semua episod

×
 
Loading …

Selamat datang ke Player FM

Player FM mengimbas laman-laman web bagi podcast berkualiti tinggi untuk anda nikmati sekarang. Ia merupakan aplikasi podcast terbaik dan berfungsi untuk Android, iPhone, dan web. Daftar untuk melaraskan langganan merentasi peranti.

 

Panduan Rujukan Pantas

Podcast Teratas